Hello everyone - happy new year to you all. We are really struggling with what seems to be bilious vomiting after every meal . Nielsen is now a year after surgery and back to work and this is the thing that seems to be really holding him back and just seems so unfair after everything he has been through. He manages a fairly good variety and quantity of food but almost everything Now comes back up - it goes down fine but then starts coming back up but mixed with large quantities of what we assume to be bile also associated with discomfort in his stomach. He is on maximum dose of Domperidone, has had Botox injections to the pyloric valve which actually made things worse and his surgeon has mentioned both pyloroplasty and vagotomy as options although neither he nor Nielsen is keen on it as there is no guarantee of success and once done irreversible. Meal times have become a bit of a nightmare - bad enough at home but when at work really difficult . I wondered if-any of you had experienced anything similar and if so have you been able to deal with it ?
Another gremlin in the mix is that Nielsen has had a mouth ulcer for the past eight weeks which although smaller has not completely gone and we have appt and presumably a biopsy on Tuesday to exclude cancer - his last blood tests showed him to be anaemic and vitamin deficient and I am fairly sure that is the cause for the ulcer - cant contemplate the other option - but yet again more worry to cope with.
Very best wishes to you all