It's been ages since I last posted, but wondered if anyone can shed any light on new and worrying symptoms?
I hate to repeat what I've put before, but Dave had his Ivor Lewis in January 2017, spent 5 weeks in hospital with double pneumonia, sepsis and chronic motility problems and had a gastric tube in to drain bile for the full 5 weeks. His eating has been really poor since and his weight went from 11 1/2 stones to 10 1/2 which is thin for him as he was tiny to start.
He had 5 gullet stretches as food was sticking and his gullet narrowing, but nothing has helped with the motility, air /gas build up and bile reflux.
In January this year after another endoscopy. they found that even afyter a 24 hour fast his stomach was still full and suggested they stretch the pylorus. Dave refused as he was worried about increasing dumping syndrome.
Since June, his weight has dropped another 1/2 stone t 9 stone 12 and he looks awful. He started with persistant runs 8 days ago and it isn't stopping, so not cobsistant with dumping or a tummy upset.
He saw the consultant and is waiting for an appointment to stretch the pylorus as he feels he has no choice now, but the runs weren't mentioned as it had only just started. He has lost another 2lbs since last week. I'm hoping that there is a logical reason for this, but panic is also setting in. Has this happened to anyone else?
We did try to contact the specialist nurse last Wednesday, but as yet no one has got back so think she may be on holiday.
Apologies for the long post, but we really are worried.