Oesophageal Patients Association

Retching, wedge pillow and immunotherapy

Hello

I had the Ifor Lewis in May 2016 and took about eighteen months to regain my weight. I had adjuvant chemo afterwards and it was sheer torture. A few months ago there were signs of recurrence so I'm back on chemo with Hercepetin. Any experience of that?

I certainly suffered a lot from dry retching, still do. Hospital are mystified. I found the OPA wedge pillow brilliant for reflux. Do get one.

I'd really like to feel that future treatment can be geared more closely to the malady. Does anyone have experience of immunotherapy? I'd like to hear about it. Prepared even to go to US if necessary.

Greatly encouraged by reading the posts. Hang is there everyone.

Ken

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Hi Ken, sorry to hear that you're back on chemo. I can't help regarding immunotherapy I'm afraid, but I just wanted to wish you well. Do keep us posted please! This site is brilliant for support and everyone sharing their experiences.

All the very best for the future, Kate.

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Hi Kate

Thanks for that. At the moment it seems much more tolerable than last time. Just a bit of nausea and of course very tired.

This is a wonderful site and I do appreciate the support.

best

Ken

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There might be a prospect of getting on to a clinical trial for an immunotherapy drug, perhaps. Your oncologist is probably the best person to advise you for a starter.

All best wishes

Alan

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Thanks Alan, I'm due to have a discussion with him soon.

Ken

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Thanks for the pillow recommendation. This campaign has been hugely successful the OPA hopes to keep it going through getting money from trust funds and other sources. Putnams have been great in giving us a great price and our own input of £12,50 Per wedge makes them affordable. Haward

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