Will to survive: I just have returned... - Oesophageal & Gas...

Oesophageal & Gastric Cancer

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Will to survive

Cromwell13 profile image
9 Replies

I just have returned to the blog and wanted to post some words of encouragement. Diagnosed nearly 7 years ago and after a total gastroectomy following stage 3 cancer I now am grateful to be here leading a normal life and can even put on weight now. Can eat as many chocolates as I want and more or less do whatever I want. It wasn’t like this in the early days but with b12 and iron energy levels are quite high for a man of 62.

Don’t give up ......just keep onwards and upwards.

Bless you all

Brian

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Cromwell13 profile image
Cromwell13
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9 Replies
brucemillar profile image
brucemillar

Brian

What a great post. Thank you and great to hear you are doing so well.

A question:

Did the eating chocolates cause you issues in the early days (reactive hypoglycemia)

And.

Did that just go away all of it's own?

Bruce

Cromwell13 profile image
Cromwell13 in reply to brucemillar

Yes the chocolate was a problem early on as was energy but I feel my body has adapted and overcome

Plums are my one downfall or orange juice in the morning otherwise ticketyboo.

I find it difficult to do a three course meal due to not having a stomach and gaseous drinks can also be a problem.

The first 2-3 or so years I was like someone 20 years older. To be honest chemo has put say 5 years on me but I’m still fit and healthy so I can’t complain.

So when they said you’ve got one year they were obviously completely wrong, medicine is not a complete science and also they will tend to exaggerate on the negative side as if things don’t go to plan they don’t look too silly !

Best wishes

Brian

AMLux profile image
AMLux

Thanks Brian for this wonderfully uplifting post.

Here's to your continued good health.

AM x

Pogul profile image
Pogul

Brian, wonderful words of encouragement and you've been so poorly. I had an oesophagectomy just 2 years 2 months ago; your words 'onwards & upwards' say it all really. I have days when I wish I hadn't had the surgery but that passes. I work full time and have always been a good walker so I walk the Race for Life and walk fun runs whenever I can. I'll be 60 in February and your words have just made my day.

Bless you too Brian and thank-you x

lightsinthecity profile image
lightsinthecity in reply to Pogul

I too feel the same about Brian's words of encouragement and I wanted to add a comment to Pogul's post as well.

As we all know, everyone's outcome is different when it comes to this awful disease. If I were in your shoes Pogul I would be over the moon. At only 2 years and 2 months working full time and doing walks - that is fantastic!

I had the open IL 8 yrs. ago, was only able to go back to work part time for 4 years and then could not do it anymore. I acquired COPD (that I was told was partially from the radiation - has anyone on here had that problem?) along with a handful of other health problems that all seemed to relate back to the Cancer treatment itself and the surgery to help fix it. It all seemed a bit odd because everything was late in showing up but when it did - they all showed up like gangbusters.

I have always had problems with my stomach incision (tender, painful) which could be due to the way it healed - the scar is not flat but puffy all around it.

I have always loved to walk but that has been dwindling down - when I get off the train to go to my doctors (when in treatment) I would like to walk, time allowing, it would take an hour. After surgery and recovery, which we all know takes quite a bit of time - some more than others - it became partial walk there, then the bus, then as the COPD and pain continued onward, it became just the bus. Then as other thing occurred, it became cabs - and what an expense that can add up to!

Now, it is cabs only and I am looking forward to some sort of miracle, but, that might be pushing it - since I am here and alive right now after being diagnosed with the deadliest cancer: Esophageal....I am not sure I should expect another miracle - but if I could it would be slowly going in reverse to buses from cabs and then walking partially with buses and then if I could be so bold as to ask that I could endure such a walk again.

Energy - that is another biggie that I find lacking after this surgery which is most likely from the combo of the treatment for (chemo, rad.) combined with the surgery.

I am sorry, aside from having this become a book but also such a downer of a post. If you could give a gal a break, it IS my first time posting here. :) :) :) :)

p.s. Pogul's post also caught my eye because I too will be 60 this year - in May.

Rsw1fe profile image
Rsw1fe

So good to know you are doing so well, Brian. Congratulations!

My husband, now 82, is also fine 6 years after his op., some arthritis notwithstanding. We know we're very lucky.

But I know from this site that not everyone has made the recovery to a good life yet, and I'm just sending thoughts of sympathy and encouragement to all of those.

Happy new year, and thanks to you all.

Debbiewallis profile image
Debbiewallis

Wonderful encouragement

Keep up the good work

Cheers to a happier future!!

Valeriejane15 profile image
Valeriejane15

Thanks Brian - needed that today. Am 7months post IL and feeling good, eating well and back at work. Still get anxious days though so it’s good to hear positives. X

DeborahGale profile image
DeborahGale

Glad you are doing well Brian. Such positive encouraging words. My Mum is 8 weeks post Oesophagectomy still early days, but she is improving week by week. I will certainly be reading your post to her.

Bless you too

Debs

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