Hi. My husband is 7 months post op for an extended total gastrectomy after cancer was found in the cardia. I wouldn't say he sailed through everything, but he tolerated the ECX pre and post op quite well and recovered from the surgery very quickly. That is apart from one hiccough when the district nurse took his staples out too early and half his op scar fell open 30 minutes later - blue light to A&E!
The problem, and I will say our problem, is food and eating or more truthfully NOT eating. He has lost over 4 stone since the op and the hospital are very concerned about this. I can understand that he will not have any appetite (he says he could probably go a week without food and he wouldn't feel hungry), however, he obviously needs to eat and this has become a major issue. I'm at one end straining my brain to come up with thoughts and ideas for foods that are calorific yet easy to digest and don't cause him to vomit, be in pain, have galloping diarrhoea or yellow floating stools and/or the most foul smelling gas one could possibly imagine. He is at the other end, mourning his loss of appetite and ability to eat all the foods he loved and actually hating food and eating, or sitting down to a family meal after getting his mind around it only to find he can't eat more than a few mouthfuls.
Food is becoming a dirty word in our household he hates me mentioning it and I stress over what to do and what to feed him. I inwardly wince every time I asked him what, when and how much and has he had any Ensures. I've listened and followed the dieticians' advice and guidelines to no avail and to be honest find that quite confusing. If he eats lots of carbs then surely this is causing a blood glucose problem? I've tried more complex carbs but then he has a problem getting them down without feeling bloated and uncomfortable. If he eats too much fat or has fortified milk (fresh whole milk with dried whole milk added) then this must be causing an issue with fat digestion.
I am now extremely worried because he has started to feel dizzy and has actually fainted twice in the last couple of weeks, the last time resulting in a very swollen and black eye and grazed knee and hands. He also reported a bright spark in his head as it hit the ground. This is not good on any level and now I've gone from being very worried and concerned the extremely worried and concerned.
Any ideas or suggestions would be gratefully appreciated.