I underwent this procedure in 2007 following having my oesophagus removed in November of the previous year - I would add that the oesophagectomy was undertaken due to a medical error in that it was discovered in the histology that there was no cancer and another biopsy had been confused with mine. I just say all this to make it clear that I didn't actually have cancer in this instance. After the operation I was on enteral feeding and the decision was made that I should be referred to St Thomas in London where this procedure would be carried out. It involved my small intestine being pulled up to construct a new oesophagus. It turned out to be very successful but of course I can only eat one course at a meal and not too large. The swallowing is quite good but sometimes in the middle of a meal there is a blockage and it is almost like a swelling and I am unable to eat any more. This can be a bit awkward if out with other people but it doesn't happen often. I should mention that it was like a miracle being able to eat again and have a cup of tea, and to be able to get rid of "the machine"!
It is the bowel situation which can be hard to come to terms with. It can be fine for a few months and then suddenly every day and during the night, usually for about a week it just goes on and on. It really wears me out and I try to think that maybe it was something I had eaten but of course I did find out that there would always be this sort of problem but I just wish it wouldn't last so long. I have no one I can talk to about this because I believe it is a very rare operation and even the local doctors seem unable to discuss it. They immediately think if there is a bowel problem it must be cancer and I know it isn't as I have had this since 2007 and I know the symptoms of cancer.. In between times it is OK so I suppose I should be grateful for that. It would be good if anyone could comment or if anyone has undergone this procedure.