I was so glad to find this site, maybe my story can help someone thinking of having Ivor Lewis surgery and those who have survived for several years can give me some incite on what my future might look like. After reading several of the posts I feel very fortunate with my recovery. I am 8 months post op, only spent 8 days in the hospital and returned to work after 3 months. I have been able to eat pretty much anything within reason and put 20 lbs back on. Sleeping continues to be a challenge, with the acid re-flux once in awhile and trying to work with different wedges. The biggest issue I have is still fatigue, the constant ache in my back where they went in and the soreness of my front ribs, this seems to be caused by the puffiness of my stomach pushing against them. I take a couple NORCO each day to take the edge off. If I can recommend anything on helping with recovery is to develop a walking regiment, they had me walking the day of my surgery and worked up to 2 miles 3-4 times a week. As far as eating goes, smaller meals 6 times a day worked for the first 3 months, now I can eat a normal portion meal ( no seconds though). I learned to eat different, no liquids with meals, only room for one or the other. I kept track of my favorite foods and worked around that and tried to avoid foods that did not sit well. In the beginning Milk shakes and Mac & Cheese were my go to foods. I was lucky I never needed a feeding tube, even through chemo and radiation. I start my follow up tests next week and living life with a new respect. Having this surgery definitely changed my life and it gave me a second chance. I could never had made it without the love and support from my wife, kids and everyone that touched our lives.
8 Months Post Operation : I was so glad... - Oesophageal Patie...
Oesophageal Patients Association
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