First, what a blessing this site is. I'm still working through all the posts so apologies if this topic has been covered in a post I haven't got to yet.
TL;DR - Pain/Nausea never went away post-surgery & Radio Frequency Ablations were effective for 3 years but then stopped providing relief.
My wife (34yrs old) had the Ivor Lewis surgery in 2010 to remove a benign tumor. Since then, she has suffered from extreme pain and nausea and we can't seem to figure out what is causing it. She is prescribed Gabapentin, Cymbalta (swapped from Amitriptyline) and Omeprazole. We eat very healthy, she sleeps propped up, and we've seen every doctor/specialist we can get our hands on. The pain episodes happen more often late at night/early am than any other time.
The interesting part is that she was getting Radio Frequency Ablations (burns nerve endings) for three years and during that time she was completely off opiates, mostly pain free, was very active, ran half-marathons, and we thought things were turning around. In the beginning the RFA would bring relief for 6-8 months but over time the relief dwindled down to 4 months, then two months, until eventually the RFA procedure did absolutely nothing. That was two years ago and since then we haven't been able to get the pain under control. Pain episodes include a lot of retching, nausea, and loud moaning.
We have experimented with CBD, Medical Marijuana, Calmare, Nerve blocks, Spine implant trial but nothing seems to help except strong opiates (which is not acceptable to us). Marijuana can relieve the pain and nausea sometimes but the pain episodes that follow usually require ER visits (10/10). Without marijuana, the pain episodes are more frequent (almost daily) but peak at 7-8/10. Currently, she is on a hiatus of marijuana to rule out cannabinoid hyperemesis as being a trigger. Recently we tried nerve blocks but she said the pain was coming from a deeper location than the nerve block was covering. The pain seems to come from her sternum area and she describes it as dull (not sharp), achy and intense.
I'm hoping someone else has an answer to this. It's got me baffled and it's exhausting.