Oesophageal cancer

[COCO5]

i have just been diagnoised with oesophageal cancer and am strugging. Would like to talk to anyone going through the same illness or have come out of it.

[yorkshirerose]

Hi Coco5. My heart goes out to you at this time. I know exactly what you are going thru as six years ago I was exactly where you are now. I know you get lots of help and support from this amazing community of survivors on this site. Know you are not alone, we're all here for you. There is light at the end of the tunnel, little steps and you will get there.

A big hug

Edwina xxx

[COCO5 in reply to yorkshirerose]

Thank you so much looking forward to talking to people who know what I am going through feel so alonexxxxxx

[yorkshirerose in reply to COCO5]

you'll never be alone on this site 😊 xx

[SteveJ]

Hi Coco5. I am getting close to being 10 years post op. Yorkshirerose is absolutely right, there will always be someone on this great site to talk to.

[COCO5]

Thank you so much but they cannot even operate on me because its too big. Thank you for your support i dont feel on my own.

[haward]

Hi Coco5

you could call the OPA helpline on 0121704 9860 and we will find someone to talk to you.

Regards

Haward

[tallbear]

Hi there Coco5,

I am a cancer of the oesophagus survivor as it is now just over a year since my operation and I am clear of cancer.

I tell you this first because I felt almost exactly as you do a little more than a year ago.

You say your tumour is too large for them to operate on at present, have they not said that they are going to try to shrink the tumour with chemo or radio therapy or both?

Have they not given you an indication of what type of treatment they propose, or is the team still working on it? That's the thing to chase up, and have you been appointed a Macmillan Nurse they are very helpful and knowledgeable.

Take some strength from the fact that an awful lot of people do have life after this cancer and there is no reason why you shouldn't be one of them so try to keep your spirits up if you can. I know just how worrying it is, I was so distressed just knowing it I couldn't tell anyone without bursting into tears and that's not like me at all!

Try to keep your fitness and strength up in preparation for the next year is my best advice and I wish you the very best of good luck

Best wishes

Richard

[COCO5]

Thank you so much Richard. I will be having chemo and radiotherapy but no op. I am being tube fed at the moment not allowed any thing that is not liquid. Being a good girl and doing as I am told by so many people just want to go out eat steak and drink wine but not allowed. Thank you for your support it means so much look forward to my e mails

Annxx

[1nicelad4u]

Bless you my heart go out to all of you!. Sometime I don't get the point of life!. When thing like this happen.. even more so to good people!!. Stand up fight! God bless!.

[COCO5 in reply to 1nicelad4u]

I Know what you mean had some dark days even though nobody would know that - keep positive thats what they say as they are going out with mates (growl).You are right always been a fighter thank you for your lovely words.

[Tgrac001]

Hi COCO5

I'm 44 and 8 weeks diagnosed with oesophageal and liver cancer. I am into cycle 2 of palliative chemotherapy to shrink my tumour down currently Iam eating better now than I have done before my ogd. Keeping as fit as possible & Positivity is a big thing to lift you up. I cried -mornings being my worst but have come around through letting friends and family help. I have faith and leaning on pastoral care. You get a sense of panic and fright but talk it out it helps.

If I can help in any way let me know. I'm in early part of chemo but aim to hang about for a while yet to help advise x

[COCO5 in reply to Tgrac001]

Thank you for your kind words and good luck you will fight it so young my thoughts are with youxx

[AoifeMcC]

I was unable to even drink water by the time I was diagnosed - I had chemo with the hope of surgery in 2006, it worked and I went on to have the surgery,