I am London based and now 5 months post Ivor Lewis two part and according to the Professor very lucky as mine was caught early and I didn't have to have any chemo (Thank Goodness). I spent just over a week in ICU and down from 10 + have lost 3 stone and have had constant diarrhea since xmas. I am 69 and no quitter, but it really has got me down as I was doing so well apart from the usual post op things. Had the barium swallow repeatedly because it kept going straight into my lungs, and after I had the stretch without sedation which was truly awful I managed to develop a new sort of swallow and burp technique.
Have had dumping and nausea and palpitations whenever I eat and spend far too much time rushing to the lav. Unfortunately for now I can no longer look at myself in the mirror I look like a skeleton and it makes me feel down.
I came across the site and thought I must have a read and join up and I can honestly say it has made a BIG difference to my outlook reading about all of you. Shared experience and lots of solution suggestions
One point I would like to pass on to everyone is in relation to continued reflux. I first tried the wedge type pillows and found I was still choking in the night with food coming back up into my lungs which is the absolute worst thing of all. After surfing I came across a metal frame arrangement you can put under your pillows and I have had no problems with reflux since. The only problem now is because I am always sleeping on my back I really do get a sore bottom, well what's left of my bottom!
Reading about everyone else has really made me count my blessings and feel much more positive I do have a lot of problems with food but what I can gather most of us do, for me it's the determination to up my weight and energy levels. I have always enjoyed walking and have done a lot of the coastal paths around the country with my sons and was a pretty fit chap. Pre op on the professors advice I did a 3 mile walk every morning before breakfast and a 90 minute workout in the late afternoon and I put on a stone by scoffing everything in sight! Now I am lucky if I can walk a half a mile without stopping for a rest every so often.
I am a vegetarian and I am having difficulty in particular with anything that includes pastry especially sweet things, but after reading about the difficulties some of you are having mine seem to seem much less significant and I feel more positive for the future.
I have learned already that a good part of the recovery process is about frame of mind and determination and I would say to all who are having a hard time with this don't despair, share, there are other people out there who care and will try to help as much as possible. Good luck and improved health everyone.