Hubby is now 5 weeks post radiation treatment, he had 25 doses (chemo first but stopped due to kidney damage, no op as cancer high up), and is suffering from extreme pain upon waking up and when he drinks water (has bladder problems due to enlarged prostate and has to drink 2 litres a day or ends up in hospital for water transfusion). He has 2 x Bu Trans patches 10mg and 5mg, takes 2 x 500mg paracetamol and an antacid & oxetacaine oral solution (unlicensed) which numbs the oesophagus but still suffers. I now have to top him up with 1 dihydrocodeine during day and 2 at nightime (to get him through the night) which does take away the pain but makes him very sleepy and pain comes back again after 3/4 hours. Before patches he was on 2 dihydrocodeine and 2 paracetamol every 5/6 hours but started hallucinating and having jerking of arms and legs. Pain specialist put him on liquid OxyNorm but this was too painful on swallowing so put him on a 5mg patch then increased to 10mg then 15mg. Is it normal for him to suffer so much? How are other people coping with pain? I would be very grateful for any advice.
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