An alternative take on GCA/PMR
DorsetLady5 months agoPOPULAR
Living with GCA and PMR is a bit like living with a recalcitrant teenager....
Fatty liver with Leflunomide
valrene10 months agoPOPULAR
Has anyone else found they have fatty liver, Gp says it's all the weight I have put on since taking steroids, have been on them 18 mths and s...
Endoscopy.../Sedation: what do I expect
yuna19718 months agoPOPULAR
I'm about to get an endoscopy next week at my local medical centre as doc wants to rule out certain things - he thinks it's probably IBS but ...
How to wean off Lanzoprazole?
suzy19593 months agoPOPULAR
Following an earlier post about PPI's, made me think again about getting off the Lanzoprazole ( I'm on 15mg ) which I have been on since befo...
February is Oesophageal cancer awareness month
margie1a year agoPOPULAR
I am promoting Oesophagealnawareness month for February by taking posters to chemists and have also put the poster on my Facebook page to mak...
Tay153 months ago
I like to share with you all fellow sufferer's " this information"studies showed that the compound inclined, left-side sleeping position make...
Endoscopy - feeling scared
sammlc3 months ago
Hi, I joined this forum to see if others had experienced similar symptoms to me. 4 weeks ago I started to have shooting pains in my stomach, ...
Pazhugsa year agoPOPULAR
Hi, I wonder if anyone can offer advise, my husband is about to have a oesophagectomy ( they are removing 2/3rds Oesophagus and and 1/3 stoma...
Hiddenaway7 months ago
So i am having to go in next week for another colonoscopy but under heavy sedation this time. My concern in how i will feel afterwards as i h...
11 years since I was officially told that I had oesophageal cancer next Monday.
AoifeMcC3 months ago
I was told that they had found something 2 weeks before that when I had the endoscope which gave me a chance to get my head around it, in tho...
leflunomide or mycophenolate
lesley20155 months ago
So she want me to go up to 9 or 10mgs of preds and want to put me on leflunomide or mycophenolate - she says the diagnosis of GCA seems corre...
1st August D- day , Consultation with the lung specialist nurse to find out if the cancer has spread also to discuss possible treatment
hollyboo5 months ago
Hi my friends Well they have all they need 2 CT SCANS TISSUE SAMPLES confirming ADENOCARCINOMA AND RESULTS OF A PET SCAN The team of speciali...
IVIG FOR PMR
jwb433 months ago
Has anybody tried intravenous immunoglobulin infusions For PMR? My rheumatologist wants me to try it....
Please sign our petition about heartburn medication!
OPA_AlanMa year ago
We have started a petition calling for the Government to requirte all over-the-counter medications to carry a warning on the packet " See a G...
ritter10 months ago
Hi any advice please, As i mentioned in my last post have recently stopped Alendronic and Lansoprazole and calcechew, and took Docs advice an...
FODMAP garlic and onion powder
nish10133 months ago
Hi All FODMAP members , I wonder how you mange when shopping pre cooked meals ? I'm using Kings's College app , all things I scanned today co...
Jude624 months ago
Had just had to up pred due to flare up and the dreaded munchies are back. From early morning til 6pm I am good and stick to sensible foods ....
Food Getting Stuck!
floozeycata year ago
Hi, I have suffered with bouts of heartburn/refulx for a few years but just before Christmas 2016 I had the feeling that food was getting stu...
SheffieldJane10 months ago
It now seems that it was most probably an Oesophageal Spasm, a condition I had never heard of....
suracon9 months ago
Has anyone been prescribed Hydroxychloroquine with Predisnolone? And if so jave you experienced any after effects?...
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