Search
Search
About
Log in
Join
Experiences with
Obinutuzumab
Posts
Communities
336 public posts
Filter results
Obinutuzumab not recommended for funding by NHS England
You can read more about
obinutuzumab
and this decision on our website: https://lupusuk.org.uk/
obinutuzumab
-not-recommended-for-funding-by-nhs-england/
You can read more about
obinutuzumab
and this decision on our website: https://lupusuk.org.uk/
obinutuzumab
-not-recommended-for-funding-by-nhs-england/
Debbie_kinsey
Administrator
in
LUPUS UK
3 months ago
colouring hair on obinutuzumab and venetoclax
I have finished
obinutuzumab
and am now just on venetoclax.My hair has been unaffected by these treatments. I would like to have good quality highlights and lowlights - is this OK?
I have finished
obinutuzumab
and am now just on venetoclax.My hair has been unaffected by these treatments. I would like to have good quality highlights and lowlights - is this OK?
Geministars
in
CLL Support
1 month ago
return of immune system
I was told my immune system would return one year after the completion of
Obinutuzumab
infusions and those ended in September of 2021. Has anyone had the same issue? Thx.
I was told my immune system would return one year after the completion of
Obinutuzumab
infusions and those ended in September of 2021. Has anyone had the same issue? Thx.
Cllinmaryland
in
CLL Support
2 months ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Cll treatment
My treatment in
Obinutuzumab
and Venetoclax.( because I refused other pills which you have take forever). I had allergy reaction each time getting
Obinutuzumab
but was under good care of nurses. Now I am still on Venetoclax for the next 4 months and after that I am done.
My treatment in
Obinutuzumab
and Venetoclax.( because I refused other pills which you have take forever). I had allergy reaction each time getting
Obinutuzumab
but was under good care of nurses. Now I am still on Venetoclax for the next 4 months and after that I am done.
Krys890
in
CLL Support
4 months ago
on watch and wait for 6 years. Numbers are going up and doc this treatment is coming
My doctor suggested a combination of
obinutuzumab
and venetoclax or zanubrutinib. I'm 72 years old and otherwise in good health. No symptoms yet but increasing WBC I'm wondering what the pros and cons of each are. My doctor likes the infusions because after a year you're done.
My doctor suggested a combination of
obinutuzumab
and venetoclax or zanubrutinib. I'm 72 years old and otherwise in good health. No symptoms yet but increasing WBC I'm wondering what the pros and cons of each are. My doctor likes the infusions because after a year you're done.
elm1
in
CLL Support
2 months ago
Venclexta & Obinutuzumab not working?
I am getting ready for my 6th infusion, all my bloodwork is practically normal. I am Trisomy 12 with notch 1, NRAS, ATM and MITF. Before I started treatment my wbc had dropped on its own from 18,000 to 11,000. And my lymph nodes in my neck and armpits had started to reduce in size. They started me on
I am getting ready for my 6th infusion, all my bloodwork is practically normal. I am Trisomy 12 with notch 1, NRAS, ATM and MITF. Before I started treatment my wbc had dropped on its own from 18,000 to 11,000. And my lymph nodes in my neck and armpits had started to reduce in size. They started me on
Corgidad
in
CLL Support
4 months ago
Acute kidney failure - creatinine is climbing
My hubby's treatment is venetoclax and acalabrutinib (he previously had
obinutuzumab
too). He is also taking sulfameth trimeth (for ammonia) and valacyclivor (for shingles) dropped from 1200 to 800 mg a day.
My hubby's treatment is venetoclax and acalabrutinib (he previously had
obinutuzumab
too). He is also taking sulfameth trimeth (for ammonia) and valacyclivor (for shingles) dropped from 1200 to 800 mg a day.
spi3
in
CLL Support
22 days ago
Hiccups!!
My dad has just started treatment this week Mon and Tues (
obinutuzumab
and ventoclax) and he has started to complain about never ending hiccups. I thought I read something about hiccups being common but I can't seem to find that again. If anyone has any insight I would appreciate it. Thanks :)
My dad has just started treatment this week Mon and Tues (
obinutuzumab
and ventoclax) and he has started to complain about never ending hiccups. I thought I read something about hiccups being common but I can't seem to find that again. If anyone has any insight I would appreciate it. Thanks :)
CBJC8552
in
CLL Support
5 months ago
Obinutuzumab
I am starting to go into infusions for my c l l the drug that they're infusing me with is
Obinutuzumab
what are some of these side effects that you have had with these IV infusions and how long should I expect to be on them
I am starting to go into infusions for my c l l the drug that they're infusing me with is
Obinutuzumab
what are some of these side effects that you have had with these IV infusions and how long should I expect to be on them
Rick48
in
CLL Support
7 months ago
Finished Obinutuzumab treatment!
Feeling great, I finished
Obinutuzumab
treatments today. I gained 10 pounds during the process. Hoping that is short lived. I will continue with daily Venetoclax until March. A couple of bumps in the road in the beginning, but overall a positive experience.
Feeling great, I finished
Obinutuzumab
treatments today. I gained 10 pounds during the process. Hoping that is short lived. I will continue with daily Venetoclax until March. A couple of bumps in the road in the beginning, but overall a positive experience.
Wendy328
in
CLL Support
6 months ago
Obinutuzumab
Just wondered of anyone has had obinituzumab iv with venetoclax as this is a treatment option I have been offered.
Just wondered of anyone has had obinituzumab iv with venetoclax as this is a treatment option I have been offered.
Guinness4822
in
CLL Support
8 months ago
venetoclax and obinutuzumab treatment for cll
Hi, I have finished the above 12 months treatment for cll tp53 mutated, I now have 2 monthly checks and my lymphocytes are low, is this a cause for concern?
Hi, I have finished the above 12 months treatment for cll tp53 mutated, I now have 2 monthly checks and my lymphocytes are low, is this a cause for concern?
dellkota
in
CLL Support
4 months ago
Celiac testing and Obinutuzumab
So I am getting tested for celiac disease. I've known I had issues with gluten for years, and my grandma had it, but it never got that bad. Now I've had diarrhea for months and am losing weight - so it seems sensible to get it checked out. But I'm on V & O, completed the O infusions in July (about
So I am getting tested for celiac disease. I've known I had issues with gluten for years, and my grandma had it, but it never got that bad. Now I've had diarrhea for months and am losing weight - so it seems sensible to get it checked out. But I'm on V & O, completed the O infusions in July (about
Greenbunnies
in
CLL Support
6 months ago
Almost to the point of despair. Sorry for this.
I'm only a few days away from starting the
Obinutuzumab
treatment and then O + V but I'm already in a stage of despair. Due to CCL, I have proteinuria and nephrotic syndrome, as I have already mentioned here on this wonderful forum.
I'm only a few days away from starting the
Obinutuzumab
treatment and then O + V but I'm already in a stage of despair. Due to CCL, I have proteinuria and nephrotic syndrome, as I have already mentioned here on this wonderful forum.
BMFCDRW
in
CLL Support
15 days ago
Chronic Lymphocytic Leukemia Therapy Guided by Measurable Residual Disease
Fixed-duration venetoclax in combination with
obinutuzumab
or ibrutinib has also been shown to improve patient outcomes. [/i] [i]However, only trends toward improvement in overall survival have been seen as compared with chlorambucil and
obinutuzumab
.
Fixed-duration venetoclax in combination with
obinutuzumab
or ibrutinib has also been shown to improve patient outcomes. [/i] [i]However, only trends toward improvement in overall survival have been seen as compared with chlorambucil and
obinutuzumab
.
Jm954
Administrator
in
CLL Support
4 months ago
Ventoclax and obinutuzumab versus acalabrutinib
I was diagnosed with stage C CLl in August with 2 treatment options. V+O for one year or Acalabrutinib for ever. Any views on the above or is it just the convenience of the treatment.
I was diagnosed with stage C CLl in August with 2 treatment options. V+O for one year or Acalabrutinib for ever. Any views on the above or is it just the convenience of the treatment.
Farleytiff
in
CLL Support
6 months ago
Anyone with AF got any experience with taking either Zanubrutinib or R&V
I was previously treated with
Obinutuzumab
and Chlorambucil for 5 sessions and this proved to be very effective as my bloods all returned to ‘normal’ very quickly and I have remained very well during and after the treatment.
I was previously treated with
Obinutuzumab
and Chlorambucil for 5 sessions and this proved to be very effective as my bloods all returned to ‘normal’ very quickly and I have remained very well during and after the treatment.
Ageon
in
CLL Support
2 months ago
mild struggles
Various treatments. 2014 ibrutinib. 2016 Venetoclax and
obinutuzumab
on trial. It worked. 2021 CLL back in bone marrow. Now starting to grow slowly. Haemaglobin only 13. I like more. I’m 54. Seem to constantly have colds. Chronic and recurrent sinusitis. Bowel trouble too.
Various treatments. 2014 ibrutinib. 2016 Venetoclax and
obinutuzumab
on trial. It worked. 2021 CLL back in bone marrow. Now starting to grow slowly. Haemaglobin only 13. I like more. I’m 54. Seem to constantly have colds. Chronic and recurrent sinusitis. Bowel trouble too.
Corin850
in
CLL Support
7 months ago
Advise on CLL Treatment Options - UK
This consisted of 5 cycles of
Obinutuzumab
+ chlorambucil which very successfully addressed my CLL and returned all my bloods to normal very quickly. During this 4 year period I haven't experienced any problems at all.
This consisted of 5 cycles of
Obinutuzumab
+ chlorambucil which very successfully addressed my CLL and returned all my bloods to normal very quickly. During this 4 year period I haven't experienced any problems at all.
Ageon
in
CLL Support
5 months ago
Thank you everyone
who helped me with my questions about how to prepare for starting my treatment with
Obinutuzumab
and Venetoclax and about driving.
who helped me with my questions about how to prepare for starting my treatment with
Obinutuzumab
and Venetoclax and about driving.
Adlucy
in
CLL Support
8 months ago
1
2
...
17
Next page
10
Filter results
Clear filters
Posted in
All communities
CLL Support
316 results
CLL America Support
5 results
Leukaemia CARE
4 results
View top 10 communities
Sort by
Most Relevant
Newest