Posts - NRAS | HealthUnlocked

NRAS

37,121 members • 45,872 posts

All posts for August 2021

Anemia symptoms

I have had RA for 8 years recently I have had my bloods done 3 times and have just had to book another appointment to get my bloods done again as my red blood...

I have had RA for 8 years recently I have had my bloods done 3 times and have ju...

Kefir

•3 years ago

8 Replies

Stopping meds with COVID 19

Has anyone stopped their meds while they have COVID 19 ? Have just tested positive for COVID 19 having been ‘pinged’ by the app and taking a pcr test. No...

Has anyone stopped their meds while they have COVID 19 ? Have just tested positi...

Bookworm55

•3 years ago

17 Replies

Extremely dry mouth

Hello all So I've had my appointment and been told it's most likely PsA. Back on hydroxychloroquine and etoricoxab ? a strong NSAID and had a steroid injection...

Hello all So I've had my appointment and been told it's most likely PsA. Back on...

Brychni

•3 years ago

12 Replies

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😁happy joints.

Now the humid weather has gone and we are having a cooler spell my joints are very happy 😊

Now the humid weather has gone and we are having a cooler spell my joints are ve...

Hidden

•3 years ago

44 Replies

Lung Problems with RA

Has anyone else been diagnosed with lung problems associated with RA? Something has come up on my CT scan but the rheumatologist was a bit vague. I think...

Has anyone else been diagnosed with lung problems associated with RA? Something ...

LuckyMB78

•3 years ago

16 Replies

Advice/opinions please…

I started Rinvoq in June. I understood that once started I would be able to reduce my Methotrexate. I’ve not wanted to be on this drug for a long time and to...

I started Rinvoq in June. I understood that once started I would be able to redu...

Sar9

•3 years ago

4 Replies

Methotrexate

How long before anyone noticed a improvement in their esr/CRP levels after starting methotrexate? Wanting to see improvement but it’s not happening yet.

How long before anyone noticed a improvement in their esr/CRP levels after start...

cba84

•3 years ago

9 Replies

Side effects of taking methotrexate

I have just read on the methotrexate web site the side effects of taking it I have at least 4 of them! feeling sick headaches vomiting diarrhoea shortness of...

I have just read on the methotrexate web site the side effects of taking it I h...

Hidden

•3 years ago

9 Replies

Here we go again

Starting injections again after shoulder op

Deejojo

•3 years ago

10 Replies

Update of really at the bottom

Hi all, I am currently in the infectious diseases ward at the Newcastle upon Tyne RVI. I've got a blood clot on my lung. Still feeling pretty bad waiting for...

Hi all, I am currently in the infectious diseases ward at the Newcastle upon Tyn...

geordienemisis

•3 years ago

44 Replies

Remission

Ok so who is in 'Remission'? How did you achieve it? How long did it take? Do you have ANY symptoms at all now? Would you say you feel like you did before...

Ok so who is in 'Remission'? How did you achieve it? How long did it take? Do...

Hidden

•3 years ago

60 Replies

Really on the bottom at the moment can't see anyway out.

I've had both antivirus jabs and was fine. As I don't go out much it's not a great problem. Fast forward to the 24th of July, a sad day as I lost my mom 2...

I've had both antivirus jabs and was fine. As I don't go out much it's not a gre...

geordienemisis

•3 years ago

13 Replies

How do I get my Dr. to take my request, for further testing, seriously? What have you done to get complete testing?

Hi! I'm new to this site and hope someone can help me with this. I'm 51, and 'think' I have Psoriatic Arthritis. My symptoms mimic those I've been able to...

Hi! I'm new to this site and hope someone can help me with this. I'm 51, and 'th...

Nuerotyka69

•3 years ago

21 Replies

Kineret anyone?

Anyone ever been on Kineret? If so can you tell me please how it worked for you. How long it took to tell a difference. Thanks so much Peggy

Anyone ever been on Kineret? If so can you tell me please how it worked for you...

precious123

•3 years ago

2 Replies

Pneumonia Vaccination

I have been on biologics for the past 11year(at present abatacept infusions every 4 weeks) & I have had pneumonia vaccination every 5years. I had a reminder...

I have been on biologics for the past 11year(at present abatacept infusions ever...

Jacqbox

•3 years ago

25 Replies

Tocilizumab

Hi I started tocilizumab about 22 weeks ago and it hasn't helped at all and I have gained half a stone in no time despite my exercise and healthy eating...

Hi I started tocilizumab about 22 weeks ago and it hasn't helped at all and I ha...

994464

•3 years ago

19 Replies

Cortisone shot in my knee?

Hi! Anyone help me regarding Cortisone shots? I had a shot in my knee yesterday and it is NO better at all today. How long does it take to "kick in" for the...

Hi! Anyone help me regarding Cortisone shots? I had a shot in my knee yesterda...

patrickd

•3 years ago

37 Replies

Methotrexate

Hi, just to let you all no had my 2nd dose of 15mg metx last night. Wanted to post as I no some have bad side effects etc, well I'm not...

Hi, just to let you all no had my 2nd dose of 15mg metx last night. ...

jojoishere

•3 years ago

30 Replies

Sulfasalazine for osteoarthritis

Hi recently diagnosed with osteoarthritis I have ulcerated colitis aswell rheumatology wants to start me on Sulfasalazine next week any advice on This meds...

Hi recently diagnosed with osteoarthritis I have ulcerated colitis aswell rheuma...

Weebell

•3 years ago

18 Replies

Toczilizumab

Just had a letter telling me that because of shortages ( due to drug being used for Covid patients) my infusion will be every six weeks instead of four!...

Just had a letter telling me that because of shortages ( due to drug being used ...

Pat9442

•3 years ago

5 Replies

First appointment

Been waiting since last October for my referral from my doctor for the pain in my hands. So glad got my appt. at last for Rheumatology team for 14th September...

Been waiting since last October for my referral from my doctor for the pain in m...

JanetJAM

•3 years ago

18 Replies

Anyone taking Orencia?

After months of taking Idacio, my consultant has decided to switch my biologic to Orencia under the brand name of Abatacept. I have no scooby what this...

After months of taking Idacio, my consultant has decided to switch my biologic t...

Ms-D

•3 years ago

55 Replies

Breathlessness

Anyone experience breathlessness while on Methotrexate

Hidden

•3 years ago

10 Replies

Mtx - does it even work?

I see a LOT of awful side effects - like nausea. It seems to take 3 months to work, but with a fulckationg disease that mut be difficult to evaluate......

I see a LOT of awful side effects - like nausea. It seems to take 3 months to wo...

krillemy

•3 years ago

20 Replies

Questions

Hi guys, I have a dilemma. I am newly diagnosed with RA and have loads of questions still about this condition. I am on Methotrexate 25mg injectable but my...

Hi guys, I have a dilemma. I am newly diagnosed with RA and have loads of questi...

Curcubeu

•3 years ago

18 Replies

Hello old friends it’s been a while

Been getting used to sort of seeing my knuckles again alas off they go!

Deeb1764

•3 years ago

23 Replies

Newly diagnosed with RA, and received methotrexate prescription today. When and how should I start taking it?

This is my second post here. I got such a fantastic response (quantity, quality and humanity) to the first one I thought I'd ask my silly questions about...

This is my second post here. I got such a fantastic response (quantity, quality ...

Aporiac

•3 years ago

36 Replies

MTX flare up

Does anyone else suffer a flare up after taking MTX? I currently inject 20mg of MTX weekly (today) For the past few months now I have noticed that on the...

Does anyone else suffer a flare up after taking MTX? I currently inject 20mg of...

Hidden

•3 years ago

7 Replies

Biologics

Hi all! I had a F2F appt with my rheumatologist today. I’m moving on to biologics and was wondering if anyone had any advice, hints, tips etc? Feeling...

Hi all! I had a F2F appt with my rheumatologist today. I’m moving on to biologi...

Sjhoney

•3 years ago

21 Replies

NRAS & Oxford University survey on patients' experience of remote consultations.

https://nras.org.uk/resource/rheumatology-consultations-during-covid-19/ As rheumatology units across the entire UK begin to redesign their services embracing...

https://nras.org.uk/resource/rheumatology-consultations-during-covid-19/ As rheu...

Hidden

•3 years ago

13 Replies

Posts - NRAS | HealthUnlocked

NRAS

All posts for August 2021

Anemia symptoms

Stopping meds with COVID 19

Extremely dry mouth

😁happy joints.

Lung Problems with RA

Advice/opinions please…

Methotrexate

Side effects of taking methotrexate

Here we go again

Update of really at the bottom

Remission

Really on the bottom at the moment can't see anyway out.

How do I get my Dr. to take my request, for further testing, seriously? What have you done to get complete testing?

Kineret anyone?

Pneumonia Vaccination

Tocilizumab

Cortisone shot in my knee?

Methotrexate

Sulfasalazine for osteoarthritis

Toczilizumab

First appointment

Anyone taking Orencia?

Breathlessness

Mtx - does it even work?

Questions

Hello old friends it’s been a while

Newly diagnosed with RA, and received methotrexate prescription today. When and how should I start taking it?

MTX flare up

Biologics

NRAS & Oxford University survey on patients' experience of remote consultations.

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