Posts - NRAS | HealthUnlocked

NRAS

36,519 members • 45,156 posts

All posts for April 2019

Why is this happening?

New to this group. Hoping to get advice. I have been taking Vagifem low dose for 6 months now with no problems, my RA although lots of damage doesn’t bother me...

New to this group. Hoping to get advice. I have been taking Vagifem low dose for...

Lilpurple

•5 years ago

5 Replies

Suffering on Humira

New to the group and hoping for insight. I have had four Humira infusions. The first three really did not help with my pain level but I wasn’t having any side...

New to the group and hoping for insight. I have had four Humira infusions. The f...

SufferingOnHumira

•5 years ago

17 Replies

Safe haven, nurturing peace and comfort

How can we encourage and comfort each other? Part of our daily struggles with our health includes battling the emotional side effects of our illnesses. None...

How can we encourage and comfort each other? Part of our daily struggles with o...

Rheumagal

•5 years ago

14 Replies

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Leflunomide fatigue

Have any of you found that you have had extreme fatigue after taking leflunomide for some time?

Have any of you found that you have had extreme fatigue after taking leflunomide...

LizaB9999

•5 years ago

5 Replies

Diet changes?

Hello! Has anyone made any changes to their diet that have made a significant difference to their condition? I would be interested to hear of folks...

Hello! Has anyone made any changes to their diet that have made a significant di...

Sjhoney

•5 years ago

35 Replies

Pip

Hi every one I ment to say an illness that are incurable not what I sayed I’m sorry

Hi every one I ment to say an illness that are incurable not what I sayed I’m so...

Jimbo64

•5 years ago

6 Replies

Pip

Does every one agree with me that everyone how has an illness that has on queer should get the enhanced rate of pip for the rest of there life and you don’t...

Does every one agree with me that everyone how has an illness that has on queer ...

Jimbo64

•5 years ago

39 Replies

Knees painful

Hi as anyone else have knees thag are twice the size of your hands and crack when you bend them or move

Hi as anyone else have knees thag are twice the size of your hands and crack whe...

Hulme301172

•5 years ago

9 Replies

Enbrel not working

I've been on enbrel ever since it was marketed but now it seems my flare ups are almost on going , my R A is only in my knees and ankles so I'm lucky in that...

I've been on enbrel ever since it was marketed but now it seems my flare ups are...

harcourt2

•5 years ago

18 Replies

Finally two years on

Finally after every hoop jumped through I have a post bone scan diagnosis of PsA. I was reduced to tears for the entire morning. Finally proof of what I have...

Finally after every hoop jumped through I have a post bone scan diagnosis of PsA...

food-lover

•5 years ago

30 Replies

Seronegative or positive

Anybody know how you tell whether you are negative or positive other than asking rheumy who I don't see again until Sept? Also does it make any difference to r...

Anybody know how you tell whether you are negative or positive other than asking...

Uga35570

•5 years ago

12 Replies

Methotrexate

Hi. I have just started back on methotrexate after a 2 month break due to dizziness and shortness of breath. Tests and bloods are all fine. I'm taking 20mg....

Hi. I have just started back on methotrexate after a 2 month break due to dizzi...

lyns62

•5 years ago

10 Replies

Have you been switched to a biosimilar of Humira? If so, we'd really appreciate your views.

NRAS has been working with NHS England, alongside other patient organisations to design resources for patients and health care professional's on the topic of...

NRAS has been working with NHS England, alongside other patient organisations to...

Hidden

•5 years ago

8 Replies

Swollen hands

Well I overdid it the other day scrubbing with a deck brush for hours. By 5 p.m. my hands were really swollen and mildly throbbing. I do suffer from swollen...

Well I overdid it the other day scrubbing with a deck brush for hours. By 5 p.m....

Esmereld

•5 years ago

5 Replies

How long till I give up hope with benepali?

Good morning, all! I've been taking Benepali for 6 weeks along with MTX 20mg. It's the first biologic I've tried and so far haven't had any improvement. I know...

Good morning, all! I've been taking Benepali for 6 weeks along with MTX 20mg. It...

attatel

•5 years ago

28 Replies

Not well

Hi all, Been on mtx for about 5 mths now and apart from alittle nausea I have been feeling great. But tool my mtx yesterday and my prednisolone in the...

Hi all, Been on mtx for about 5 mths now and apart from alittle nausea I have b...

SmithsOriginal

•5 years ago

9 Replies

Cimzia to Adalimumab (Imraldi)

I have RA has anyone been changed from Cimzia to Imraldi ?, or am I the first guinea pig !

I have RA has anyone been changed from Cimzia to Imraldi ?, or am I the first gu...

RedPip

•5 years ago

7 Replies

MTX and darker urine

I started mtx this week. Is it normal that the urine gets darker? I try to drink a alot of water, but it is still darker then what I am used to.

I started mtx this week. Is it normal that the urine gets darker? I try to drink...

Hildestj

•5 years ago

3 Replies

Benepali/Etanercept and Neutropaenia?

Recently started Benepali /Whenever and 7 weeks in am neutropaenic again with neutrophils at 0.92. Happened when i was on Leflunomide so had to stop thst and...

Recently started Benepali /Whenever and 7 weeks in am neutropaenic again with ne...

Beelady

•5 years ago

1 Reply

5% Add yours?

Wishbone has a great thread of "Pain free?" which coincided with something I'd been thinking about recently. Tami, a dear friend, has fibromyalgia. She got it...

Wishbone has a great thread of "Pain free?" which coincided with something I'd b...

ArtistBlythe

•5 years ago

32 Replies

Hip not able to bend now

Hi I’ve got RA to you who don’t know . I’ve tried lots of different potions to keep this dammed condition in remission I changed Rhuematology a little...

Hi I’ve got RA to you who don’t know . I’ve tried lots of different potions t...

Hidden

•5 years ago

12 Replies

Methotrexate

Hi everyone I am seeking some advice about methotrexate, I have RA and have been taking 200mg of hydroxychloroquine twice a day for 7 years and it was under...

Hi everyone I am seeking some advice about methotrexate, I have RA and have been...

Smurf62

•5 years ago

30 Replies

Liquid diet due to swallowing issues, any tips??

I posted on here before about some swallowing issues, unfortunately they have gone from bad to worse. I started having issues at the end of January which we at...

I posted on here before about some swallowing issues, unfortunately they have go...

Jj01994

•5 years ago

19 Replies

Painful feet, any suggestions for ankle support, also footwear ?

Hi everyone, Like many Rheumatoid sufferers, I have had painful hands and feet from day one. But, it is my feet which are the most painful, relentlessly. I was...

Hi everyone, Like many Rheumatoid sufferers, I have had painful hands and feet f...

petalnumber2

•5 years ago

40 Replies

RA & Fatique

Does anyone else feel that they are just about “keeping their head above water” with the awful fatique that comes with RA? I try to keep active, dog walking...

Does anyone else feel that they are just about “keeping their head above water” ...

Juliachoo

•5 years ago

100 Replies

Tocilizumab

Been on Bengali injections for several months with prednisalone thought the biological was working as I felt really well then had to taper off the steroids and...

Been on Bengali injections for several months with prednisalone thought the biol...

Susiequest

•5 years ago

6 Replies

There is hope for us all !!!

Hey you fabulous people. Well another appointment with consultant who I’ve been under for about a year now. After being told that I was virtually untreatable...

Hey you fabulous people. Well another appointment with consultant who I’ve been ...

Leics

•5 years ago

8 Replies

Update ....... I think.....

So, since changing from my poop to good gp, getting my referral, being given no information at said referral and having another battery of testing, we are...

So, since changing from my poop to good gp, getting my referral, being given no ...

Ginge_31

•5 years ago

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Awaiting new supply

Hi Last week I finished my last benepali injection. Should have had a new supply but waiting for prescription from the hospital I’m under. I’ve called the...

Hi Last week I finished my last benepali injection. Should have had a new supp...

Matilda_1922

•5 years ago

12 Replies

NRAS Group Meeting Next Week

Dear All Please find details of the NRAS Group meetings taking place next week. For more information, please go to our website www.nras.org.uk/groups....

Dear All Please find details of the NRAS Group meetings taking place next week. ...

Kim-NRAS

NRAS•5 years ago

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Posts - NRAS | HealthUnlocked

NRAS

All posts for April 2019

Why is this happening?

Suffering on Humira

Safe haven, nurturing peace and comfort

Leflunomide fatigue

Diet changes?

Pip

Pip

Knees painful

Enbrel not working

Finally two years on

Seronegative or positive

Methotrexate

Have you been switched to a biosimilar of Humira? If so, we'd really appreciate your views.

Swollen hands

How long till I give up hope with benepali?

Not well

Cimzia to Adalimumab (Imraldi)

MTX and darker urine

Benepali/Etanercept and Neutropaenia?

5% Add yours?

Hip not able to bend now

Methotrexate

Liquid diet due to swallowing issues, any tips??

Painful feet, any suggestions for ankle support, also footwear ?

RA & Fatique

Tocilizumab

There is hope for us all !!!

Update ....... I think.....

Awaiting new supply

NRAS Group Meeting Next Week

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