Humira for R.A. and cold sores.

[ladydeerthorpe]

Humira is great for my R.A. but I am getting huge cold sores on my

mouth every month. I think the Humira lowers the resistance to any

virus infection. Has anyone else had this inconveniant side effect?

[watson3]

Due to start it this week so will let you know how it goes. Try igloo or orabase paste from your GP.

[ladydeerthorpe in reply to watson3]

ok. Thanks for that. Hope it goes well for you.

[Hidden]

Can you take anti viral tablets while on Humira? I know my rheumy nurse suggested these to me as I was getting them every month. x

[ladydeerthorpe in reply to Hidden]

It's a relief to hear someone else has the same problem.

I'm on Acliclovir so I hope it soon clears. Thanks.

[earthwitch]

I think it would be a good idea to talk to your GP about a more systemic antiviral treatment to try and get rid of it more permanently, if you are getting them every time you have your humira.

[ladydeerthorpe in reply to earthwitch]

I will go back to GP when this present crop clears, not going out at the moment

because so unsightly. Thanks for reply.

[earthwitch in reply to ladydeerthorpe]

definitely take photos of them though, if you are planning on only seeing your doctor when they have cleared. They need to see how bad they are getting.

[ladydeerthorpe in reply to earthwitch]

Good thinking batman!. I look like the Elephant man, even scare the

postman. Thanks.

[samuffin]

I have had the same problem over the last 3 years and I have been put on Aciclovir, one per day. I was having them down my neck and on my back. Taking the aciclovir is the lesser of 2 evils.

[ladydeerthorpe in reply to samuffin]

Yes, I am going to persevere with Aciclovir. Thanks for reply.

[Smartygirl]

I went on........ Humira....... in November like you said I started to have infection on my legs & had burning sensation in my body, It was terrible so I had to stop the treatment ...... it's a shame because it was good for my .... RA,..... but i wasn't told to take Anti Viral tabs,

[ladydeerthorpe in reply to Smartygirl]

That's bad news especially as the Humira was working for you.

Maybe Dr. thought you were just too allergic to it! So many

people get side effects from drugs that work for the original

problem.

[Smartygirl]

Thank you ..... yes maybe that's it ..... I have had... R A & O P for 20 years & tried almost every MEDICATION I think there is .... I think I have the Medical Staff scratching there heads at moment, Thank you so much for answering my message ..... I am amazed how many people SUFFER with this HORRABLE DESEASE..... but we have to thank our stars because there are worse , God Bless, x

[ladydeerthorpe in reply to Smartygirl]

Yes, I've had it for years as well, but am doing well on Humira.

I also have OP & fractured 2 vertebrae because of it. I'm

sure OP caused by steroid treatment I had in the past.......

another example of nasty side effects creeping up on you.

Hope you getting plenty of calcium, milk, cheese, yogs. you can

even get calcium Ribena. Keep soldiering on. X

[rdiannuzzi]

I’ve just started Humira and have only had 3 injections. Within days of having my 2nd & 3rd injections, l have developed cold sores on my lips. Hope this doesn’t continue every fortnight! Only benefit is that they’re covered by my mask.

[islander99 in reply to rdiannuzzi]

I have been on Humira for a year and about two months ago started getting cold sores one after another. Humira was working but I do not want to deal with cold sores.