well sylvi got on enough at me to go and shirl so im going this morning down to a&e see whats what.

[minka]

hi all IM GOING THIS MORNING as it was quite bad yesterday night i was awake at 4.30 but just lied in bed 8hrs sleep would be good i might feel a bit better on that

washed me feet again last night with normal water see if that help and put some sudacrem on me feet

was getting me in the groin a bit this morning walking dont know weather you people experience this or not with ringing in my left ear

and me feet feel like someone has taken a hammer to them seem to be twisting a bit out of proportion and cold and blue

and the cold sores on the better leg big toe are not helping any.

and the topping on the cake is the hands are flaring again them little lumps on me fingers.

what a mess this lot is should have stayed with what i had and not done that operation and them not fixing the problem proper but having to go back for i dont know what options.

i will let you know how i go on bet i get nothing from them not even an xray.

ha well such is life with this bloody thing

regards john

[sylvi]

Take care john i'm rooting for you and your wife.xx

[Hidden]

good luck xx

[minka]

THANKS SUMMER GONE ON LONG ENOUGH THIS HAS I NEED SOMETHING FOR THIS HOPE I GET A PARKING SPOT THEIR TODAY AND BET I DONT GET SEEN TO QUICKLY

NHS IS CRAP GO IN TELL THEM YOU GOT A CUT FINGER AND THEY PUT A PLASTER ON YOUR BUM

[Munchkinella]

Aw not good John hope they can do something for you. Take care. Love Janet xxx

[minka]

THANKS JANET THJIS IS JUST GOING WORSE AFTER THE OPP ON THE KNEE

[Neverwell]

Good luck John hope they get you sorted love Karen x

[watson3]

Best of luck. Thinking of you.

[Hidden]

Hi John,

after everything you've been through not having a diagnosis, or having an unconvincing diagnosis must be incredibly frustrating. So it's no wonder you think the NHS is crap & probably feel that they will never even try to get to the bottom of what's going on.

When I'm up against a brick wall I try to hang on to the idea that the NHS can be a very inconsistent service - there are sort of islands of excellence if you know what I mean but it's not always that easy to find them! I think you just have to keep trying every option & sooner or later some nurse or doctor will come up with something that actually leads somewhere constructive.

Going to A&E is definitely the right thing to do. Good luck, Luce x

[miss]

John i hope that you got some help today. Thinking good thoughts for you xx

[aligator]

Hi John, I,too hope you get some answers to the problems you are dealing. Life is horrid when you have to rely on a system you do not feel confident in. I pray your update brings better news for you. good luck.

Love Alison x

[petalnumber2]

Hi John, hang on in there and just keep chipping away, you will get to the bottom of it all before long. My thoughts are with you June xx

[Franbie]

Hi John. I send you luck as well. I know how you feel about not getting answers I am going through similar and feel very let down by the NHS. You end up having to take a degree course in medicine yourself to try and find answers.I hope you get help soon. Franbie x

[Hidden]

John how did you get on at A&E today? Tilda x

[minka in reply to Hidden]

BLOG REPLY TILDA AFTER ALL THE COMMENTS

PUTTING LEGS IN VICE THIS MORNING AND SAWING THINGS OF THAT ARE NOT NEEDED.

LOL

[shirlthegirl]

Hiya John really glad you have now gone, How did it go? xx

[minka]

will put new blog up today

[Neonkitty]

John, I got ringing in either ear when I had taken Ibuprofen many years back at onset of RA. It stopped when didn't take them. Recently when j have had to take Diclofenac for my flare up, I got some of that ringing back. It wasn't anything like as bad as before on Ibuprofen (which I didn't stay on for long). Was told it was quite common to experience ringing in the ear with some anti inflammatories. It didn't last for more than about thirty seconds at a time but it was quite intense when it did it.

Julie

[minka in reply to Neonkitty]

hi

im not on ibrufen or the diclofenac which i stoped taking this has been going on since i got this thing well about 7 months of it but thanks for reply

[Neonkitty]

John - ask your GP and/or Rheumy if anything else you are taking might have that ringing side effect? Hope it will go.

Julie

[minka in reply to Neonkitty]

kitty for the last year ive been on me own with this thing apart from the private rumi appointment trying to crack it.

i dream of a rumi referal the one i saw on nhs said this is going to go in the early stages YOUR DISCHARGED.

the private one new exactly what it was looking at my hands sponduropathy enthesis being my ligaments are under attack by my imune system with considerable inflamation he said

had it 3 times and never new what it was always getting rid of it but with a bit of damage every time

this time no GO took me over a year just on the others.

then the guy told me where my pains where without looking cant see that being a good guess can you.

i expect these little lumps which have inflamation on them in my fingers are probably the same stuff as in me feet and possibly as he said si joint in back.

if i could trade 5 weeks ago and not had an op on the knee leaving it in a mess not corrected i would do.

but then again the inflamation in the feet could be from anything they did in the knee nerve wise i just dont know or infection

[pauluk60]

minka this may sound stupid but i used and it WORKED HONEST found it online if you got some vicks vapour rub try on feet dont laugh made my big toe right and my left