Waiting to go to hospital!: I'm sitting on the sofa... - NRAS

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Waiting to go to hospital!

Marnie87 profile image
8 Replies

I'm sitting on the sofa after getting dressed has puffed me out.

My hospital appointment is at 11.30 and I here what they have to say after stopping enbrel two weeks ago due to the hardness that was all over my body.

At the ra physio yesterday the RA consultant that was brought in thinks the hardness might be down to schlerodema so I need to discuss that aswel today with my consultant.

I'm so nervous I feel like its the first day of school.

I really need some progression today as my mood is so down.

I hope I can keep calm and hold back the tears.

Wish me luck my little rA friends.

Hopefully start a new Tnf or tests for schlerodema

I ho I ho it's off to hospital I go, with my mum and my wheelchair, I ho I ho I ho

:-)

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Marnie87 profile image
Marnie87
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8 Replies
Ella32 profile image
Ella32

Good Luck sweet, let me know what happens??

Love Ella xx

sylvi profile image
sylvi

How did it go today? well i hope. xx

little_em18 profile image
little_em18

I hope everything went okay today. Its great to see that you still seem quite positive! Remember laughter is the best medicine :)

All the best :) x

Marnie, We are all thinking of you and are anxious to hear how things went at the hospital. Keep up the spirit! Loret

Marnie87 profile image
Marnie87

Hey lovely ladies,

My consultant thinks I have something else aswel as RA as my reaction to DMArds and anti tnf's is not text book so she is referring me to another consultant up in london for a 2nd opinion.

Scary stuff!!! Also means I'm stuck in this miserable existence of wheelchair bound, sleeping on sofa, not going to work for a lot longer.

Today I realised it is a definite long road to recover.

Hospital had worn me out today so going to enjoy a good nights sleep hopefully.

Night all x

Beth58 profile image
Beth58

Good luck, hope you get answers very soon. xx

Gina_K profile image
Gina_K

Hi Marnie,

Glad you are being referred on, don't be scared, they will get to the bottom of it. In the meantime keep posting and take the time to rest up and keep warm. I am sure you will be back to work in the new year and hopefully this will be like a bad dream.

gentle hugs, Gina.

ps. old ERs on sky atlantic are holding my attention at the moment post George Clooney ones I never saw. :)

Gina_K profile image
Gina_K

Hi Marnie,

Glad you are being referred on, don't be scared, they will get to the bottom of it. In the meantime keep posting and take the time to rest up and keep warm. I am sure you will be back to work in the new year and hopefully this will be like a bad dream.

gentle hugs, Gina.

ps. old ERs on sky atlantic are holding my attention at the moment post George Clooney ones I never saw. :)

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