As i promised...........: Hi everyone, Hope you are... - NRAS

NRAS

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As i promised...........

shirlthegirl profile image
12 Replies

Hi everyone, Hope you are having a pain free weekend, I can really notice a lot of difference

in my pain and stiffness since my steriod injection Wednesday........ I know it is only masking over the problem, But it's so great!!!!! to fill a bit normal again, I will be starting my meds next Sunday after my appointment with my GP on Thursday, I just want to have a good nite out on Friday, before i start on the methotrexate, Should be of the painkillers by then to,

So look out town here i come!!!!!!!!!!!!!!!!!!!

My daughter showed me how to put my picture on the site and my location lol, I used to live in London but moved here 7 years ago, its a lot more slower, but i enjoy it, As London is such a rat race now.

Take care xxxx

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shirlthegirl profile image
shirlthegirl
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cris1728 profile image
cris1728

Hi Shirley

great news that you are having good effects from the steroids and doesnt it just feel wonderful to start feeling a bit more normal. I am still feeling a lot better than I was before I had the steroid jab and am hoping it continues but still trying to pace myself saying that I went to a zumba class at the gym on friday evening and it made me realise how much I am not able to do although I did enjoy it and didnt suffer yesterday and feel ok today so far. I was impressed by how quickly you got a diagnosis and started treatment and hope you have a good night out on friday. hoping the treatment works for you and that you get lasting benefits. I still havent got a copy of my letter from rheumy or results and GP didnt have them last Mon.but am going back tomorrow to have BP checked(was ok last week although up at rheumy appt) and will be asking if they have them yet.

good luck and enjoy your freedom before next week.

cris xx

shirlthegirl profile image
shirlthegirl

Hi Cris, I hope you get your results soon, It's must of been nearly 2 weeks since you had your tests, I was told at the rheumy that my GP should have my results of my blood test etc within a week, Hope they have them for you soon............ I also have high blood pressure, The funny thing about it is i brought myself a blood pressure monitor,and everything is fine when i am at home, But when i going to the GP it's sky high, So she has told me to take notes of them.which i do, i normal take my blood pressure every week,

What a different a day makes, had hardly no stiffness when i woke up this morning WEEP PEE,But am still having to take painkillers etc, Am slowing trying to cut them down.

Yes Friday can't come sooner enough, Haven't been out with friend for at least 5 months,

So i hope i can make the most of it.

Good luck for tomorrow let us know how you get on Xxx

dtech profile image
dtech

I had to have a steroid jab last week. 13 hours in a airplane seat doesnt do RA a lot of good, as I try to explain to people who say 'Oh what a great job you have travelling round the world'!! Thought I could get it fixed with physio but it didnt, so quick jab in the neck & shoulders worked wonders:-) Are you seeing an RA specialist??

shirlthegirl profile image
shirlthegirl

Yes, but i only had my first visit on Wednesday, I had the injection in my buttocks, So that was nice,And am starting my meds next sunday after seeing my GP, I think when you have the injection into a certain joint it seems to work quicker,

As in the middle of June when my RA first started, i had a injection in both my shoulders and it only took a couple of days, But this seems to be taking longer,

I think the first thing people would think i would love a job like that, but i'm sure having to put up with the RA as well they would change there tune.

Shirl xx

Shell1967 profile image
Shell1967

Shirl I'm like you where gp is concerned,ok at home but wen i go to drs it goes thur the roof !!! At home its usually 130/85 and drs 160/108 was my highest lol !!!! Had to do it at home for a week and go back but it was fine ,how weird lol !! White coat syndrome is wot we have !! So glad ur feeling better,I had a glass of wine last nit e wen I went out and it felt like I had 10 as haven't touched a drop for 10 weeks as wanted to give mtx a fighting chance but it felt so good haha !!! If my nxt blood test is ok I am going to treat myself to a glass of wine a week.as they 1 to 2 units a week is fine.have a brill nite nxt Friday :)))))) Michelle x

shirlthegirl profile image
shirlthegirl in reply to Shell1967

yes we seem to have a lot in common Michelle,,Are you taking anything,I am on lisinopril, Have been fulling apart over the last few years, When i was 40 my cousin said it's all down hill now shirl, and he was ssso right, I think i better take it easy to haven't had a drink for at least 5 months.

Xx

Shell1967 profile image
Shell1967 in reply to shirlthegirl

Is lisinopril for bp? No I'm not taking anything as its normal at home !! Come on Ella or James Arthur !!!! X

shirlthegirl profile image
shirlthegirl in reply to Shell1967

Yes I have to take one every morning, well never mind at least James is still in xx

dtech profile image
dtech

I know what you mean about drinking! I stopped for 2.5 yrs after I was diagnosed as told it was not good to drink as it affects the kidneys. But my RA consultant said so long as I don't binge (haha those days are long gone) I should be ok. So I have a couple of Corona's if I go out, and I am, so far, ok. Except the alcohol hits me brain harder now. So I feel 'merry' without it costing too much! So maybe RA does have a benefit. lol.

dtech profile image
dtech

Re diagnosis. It appalls me the time it takes to get diagnosed and treated on the NHS. I have heard of somepeople going 2-4 yrs!! I was lucky enough to have private medical insurance through my company so it only took about 2 months. And that was bad enough, the pain I was in. Anyone else been sent loopy on co-codemol??

shirlthegirl profile image
shirlthegirl in reply to dtech

I had to wait 4 months and that was after being diagnosed by my doc With a RF of 689, and also haven't been to work since july due to the delay, it doesn,t make sence.

Yes I am sure I will save a lot of money, At least I will also have plenty of money for my hoils this year, have already started saving, When I got this I wished I had taken a insurance out years ago,when I worked for tescos, but you don,t think about it when you are young, mind you somethings are not always covered, I,m loopy any way so I properly won,t notice ha ha Xxx

cris1728 profile image
cris1728 in reply to dtech

Hi dtech I cannot take cocodamol makes me go dizzy feel sick cant stand up go pale cold and sweaty so wont even try it again. I also csannot take anything else with codeine in it. cocodamol is paracetamol and codeine. There are lots of other meds which contain codeine as a painkiller so it may be worth thinking about that if you take any other painkillers. codeine can make you feel loopy too.

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