what next i wonder !: on sulfa since april, having... - NRAS

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what next i wonder !

jonsi profile image
4 Replies

on sulfa since april, having realllly bad sweats, went to gp , they said speak to your rhuemy, so i have an appointment next wed.. the thing is my shoulder and wrist is now sore and swollen, so i dont feel as if anything is working and im kinda scared to find out whats gonna happen next. sorry just had to have a moan lol.

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jonsi profile image
jonsi
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4 Replies
elrose profile image
elrose

Try to remain positive, you dont say how long you have been diagnosed or any other meds tried but it is often hit and miss before you find what works for you, I have over the years tried a plethora of things, most having no effect (ill or otherwise) and am now down for Rituximab infusion (on top of Hydroxy) you could drive yourself nuts on the what ifs...

Best you make sure detail all of your issues with Sulpha and your current status ref pain and swelling, rheumy appointments can go in a blur and before you know it you're out on the pavement thinking 'damn, should have mentioned...'

Good luck, hope the next one is what works for you..Linda x

I wouldn't worry so much Jonsi - if you've only tried Sulpha so far then there are plenty of other DMARDs left for you to try - the main three being Methotrexate, Hydroxichloraquine and Leflunomide. Lots of people here are on more than one dmard and I tried Sulpha first and it didn't suit me so I am now on MTX and Hydroxy as a combination. I did have side effects to the Methotrexate (MTX) but have got around them with injectable MTX now so have reasonably little pain these days. Just because you are on a drug already it doesn't mean it's enough to do the whole job of halting your RA so you may need several but at least you have an appointment soon - I suggest you be completely open with the consultant - they only want the same thing as you - to get you stable and happy. Good luck, Tilda x

minka profile image
minka

just a think may not be the sulfa

i have bad sweats since april and ive only had an injection

so it might not be the sulpha might be the amount of inflamation in your body everytyhing in aches moves about from joint to joint and this may be doing it

i did read that because most rubbish in the body gets pushed out throug the kidneys as waste because it cant cope with it all you sweat it out at night thats the way the body gets rid of it how true this is TILDAT MIGHT BE ABLE TO COMMENT

Regards john

other thing is ive been like that what is going to show next its frightening but you have to keep calm about it more stressed you getseems to make things worse

allanah profile image
allanah

Hi jonsi

I am really sorry to hear you are still sore and in pain with your shoulders and wrists. I found it so tiring and worrying too when mine were swollen. It took me a while trying various drugs and drug combinations to get the right treatment and I Did feel tired, hot and sweaty and in pain until we got the drugs right. I think as your joints are still swollen the inflammation makes you feel hot and sweaty. But ask your Rheumy to have a look at your joints, and maybe also talk about increasing or changing your drugs, if they think they are not really helping as u have been like this since April.

I also got steroid injections into my shoulder which really did help me and got oral steroids and stronger pain relief when it happened to me.

The good news is that they did eventually get the pain and swelling down! Glad u r seeing the docs on Wednesday, have a list of things to talk about when u go as after u r talking the minutes go by quickly. Have unused heat and cold packs on your shoulders, I found heat pads very soothing.

Good luck next week, let us know how it goes A xx

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