My nurse mentioned that I could apply for a grant to adjust my bathroom, anybody know how I do this?

[Marnie87]

[Hidden]

Hi Marnie, the best person is your OT ( occupational Therapist) they arrange all these types of things.

Good luck.

mand xx

[Marnie87]

Hi mand, I don't have one of those. So my next questions how do I get an OT to get the answer to my other question lol

[Hidden in reply to Marnie87]

You will need a referral either from your Consultant/GP or maybe nurse can do it too. Don't wait for your next appointment unless it's quite close and if I remember right its over a month away! give them a call and just ask if you can have a referral to an OT.

I'm surprised you don't already have one as this is one of the first things they do along with a Physio. Your nurse obviously thinks you have already been referred as she mentioned it to you.

Good luck

mand xx

[Marnie87]

I have a telephone appointment tomorrow so will ask then. I had a physio appointment ones but got angry and left, after her telling me I had RA because I had one leg shorter than the other :-).

Thanks

Marnie x

[Hidden in reply to Marnie87]

Ok Marnie, good luck hope you get it sorted, anything else you need to know just ask.

Sorry to hear about the Physio not going so well, you could ask to see a different one. If your not happy with anyone who's treating you then you have a right to ask to be treated by someone else.

She had no right to say that to you she obviously doesn't now a lot about RA.

Mand xx

[Marnie87]

It was a very Precisie evaluation either she used avon catalogue's so I have my right leg which is two Avon catalogues shorter than the left. We could all write a book about our funny experiences. X

[kathgallagher]

I have seen the physiotherapist but apart from seeing an OT when first diagnosed I haven't seen on since that about 4 years ago. could I ask to be refereed WHEN I get a rhuematology appointment as I have lost over a stone recently and would probably benefit from new splints etc

[Hidden in reply to kathgallagher]

Yes just ask for a referral, most hospital now have their own OT's and Physios who deal directly with RA patients (through a referral) so they understand our needs better than others.

mand xx

[kathgallagher]

Sorry i forgot to say all those years at Uni and she uses Avon catalogues !!!

[LavendarLady]

Hi Everyone, you could also contact social Services as well. I found them very helpful in getting special toiletting things for me as well as handles on my back door to get me over a very steep step! They have their own occupational therapist who will visit and assess what you need and it's free! LavendarLady x

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ot/ social services together got me a bath board and step!! for free.( permaanent loan!)

The more expensive things unless you are not working !,are on a means tested sytem. I have been given a quote for some alteration work ( county council/ social services!)in my bathroom and im going to be paying £306 towards it!.

I think this would appear to be somewere between a half and a third of the cost myself.. think it is bit nearer to a third of the bill??!

[javgb]

they told me I had Bruxism :S

Can you tell me how are those bathrooms? Is any way to upload pictures?