Hi All, I've not been on here for some time, just so busy!!
Well, a quick summary:
I'm 18 months post diagnosis. I'm on MTX injections, diclofenac, paracetoamol, and hydroxychloroquine. I work 3 days a week (as a physio) I have a very busy life, 2 small children, I swim and do wii fit (not as often as I would like though!).
I'm seeing my consultant on friday and although I'm managing, I have really problematic joints and I can't remember the last toime I had a painfree day, I long to not have problems associated with RA and I would like to be painfree. Is this an unrealistic expectation?!
I have been assessed for anti TNF by doing a DAS score. I never score very high cos my worst joints (feet) don't count on the DAS and also my husband reckons that I play my pain down and don't speak up enough about it. But when I read about other peoples pain and suffering on here I feel grateful for how I am, in that I am actually doing OK.
What do you think? Should I be asking for more from my consultant? I'm 36 and have many years left (hopefully!!!) and can't imagine being like this for another 40 odd years....!! thanks for any advice / support x x