im on my third infusion of thocilimab felt gud on the second one, this one i had few days ago not doin gud at all big flare up feet ankles kness feel like ive had a hammer on them, had another mri scan as they think my discs have moved again , my body had only just got over the op gotta wait for results again feelin pretty low today didnt think id be havin any more dark days ,i was soooo happy i hadnt had a reaction like i had with the last 8 other treatments i just carnt understand why my bodys reacting ,i waited 7 months to see consultant waited at the reception gave my letter in to be tld dr barkham on holiday i shud of had a cancellation ,oh well maybe one day we might have a doc who suffers ra im pretty sure wed be treated with better care thats all i can say ok rant over thank god ive got this site .got my splits being fitted nxt week for my hands fingers curled up hope u all have gud day xxxx
feel like ive gone ten steps back (: im on my third... - NRAS
feel like ive gone ten steps back (
Written by
angelwishes
To view profiles and participate in discussions please or .
1 Reply
•
Thats so horrid cos I really build up for weeks to these appointments and would be gutted if they were cancelled.
I think i would like Dr Martin who is kayaking around Britain for us and his patients!!
i found the splints very helpful after i sorta took time to get used to them so I hope u like yours. Hope it all comes together for you soon, its very hard going through the infusions/appointments/OT stuff, I felt like a professional patient for a while lol
Axx
Not what you're looking for?
You may also like...
Normal CRP but feels like a flare?!
with fatigue these days. However over the last week I have had a couple of days of pretty severe...
I feel like a tinwoman today
During the day, I feel like I'm about over this cold, but the last 2 nights I cough as soon as I lie
Flare that feels like a lung problem?
downhill. He’s had the ‘normal’ short lived flares where he’ll have inflammation and pain in one...
Feeling like a failure
to be a mum at times. I had a brief but beautiful spell of a pain free body because I was on a...
One step forward 2 steps back
then started steroids that had been prescribed for my asthma. Within days my breathing was...