JYSELECA: Is anybody on the latest medication for... - NRAS

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JYSELECA

Lilahloo profile image
16 Replies

Is anybody on the latest medication for rheumatoid called JYSELECA. I am going to start in a few weeks after being on Benepali for a few years. Just wondered if anybody already on it.

16 Replies
Lolabridge profile image
Lolabridge

I think that’s the manufacturer’s brand name for Filgotinib, which is a JAK inhibitor medication for RA.

I’m not on it but others on this site may be. If you don’t get a response try reposting with the generic name.

You could also put Filgotinib into the search box as there may have been other posts about it. Also look on the main NRAS website for information.

Hope it works for you.

Lilahloo profile image
Lilahloo in reply to Lolabridge

Thank you

nomoreheels profile image
nomoreheels

I replied to Storms57 yesterday who was asking about another JAK inhibitor Rinvoq (upadacitinib). I also gave the NRAS link to JAK's if it's helpful at all nras.org.uk/resource/jak-in...

I hope it works well for you.

Amnesiac3637 profile image
Amnesiac3637

Hi. Have been on Filgotinib (Jyseleca) for three days. This is my second Jak - the first one and very similar in mode of action - was Baricitinib. Fabulous drug for me, started working within a week and was brilliant for just under three years until I got Covid last February and it switched off.

In between I have had Tocilizumab which didn’t suit me at all so my rheumatologist has gone back to the Jaks as I responded so well. Astonishingly, the Filgotinib has, in three days, reduced the swelling in my hands and my pain level has reduced slightly already. Whoohoo! I have had RA for over 33 years and have all the drugs known to medical science and it looks like these latest ones are winners. The caveat is that not all drugs suit all sorts of people and what suits me may not suit you but really I hope you have the sort of result I’ve had. Never had any side effects from Baricitinib and so far so good with Jyselyca so keeping fingers, if not crossed, lined up for another few years of good!! Best of luck when you start 🤞😄

Lilahloo profile image
Lilahloo in reply to Amnesiac3637

Thank you looks like u may be okay. I also had rheumatoid for 21 years and the injections always worked but a nuisance they have to be kept in a fridge as always worrying about power cuts. Will start new meds soon x

lucymead profile image
lucymead in reply to Lilahloo

No need to worry about power cuts. Inform your electric company and they will put on the list for special terms. They will not cut you off for more than 1 hour with an hours notice. most of our meds are ok for this length of time. if not make sure you have freezer blocks in your freezer to supplement where you keep pens.

Chocnbags profile image
Chocnbags

I have been on Filgonib since January and could see a different in the first 10 days , it has changed my life no side effects at all ,I also take 15mg methotrexate,which will be reduce to 7.50 later this year if I am still doing well .

Mmrr profile image
Mmrr

I have been on Filgotinib (Jyseleca) for 7 weeks. I began to notice a difference almost immediately in terms of reducing the heat in my soft tissues, I didn't really appreciate how much it was benefitting me until I had to stop it due to having an infection. I restarted again a few days ago.

Evie3 profile image
Evie3

not heard of that one….will research now. Keep us informed how it goes.🤞

Obibobi profile image
Obibobi

Hi, I have been on this drug for a few months, and swelling in joints has reduced, now minimal and overall feel much much better. I do not appear to have had any side effects either. The only other thing I would mention is that I have been advised to use a high factor sun protection as there is some suggestion of slightly increased risk of melanoma.

Ellal profile image
Ellal

Yes, I have been taking this drug since June 2022. I am fine on these meds and have no adverse side effects. My RA is well controlled.

Blodynhaul profile image
Blodynhaul

Hi Lilahloo,

I've been on Jyseleca (Filgotinib) 13 months now. It's doing a great job controlling the RA. The RA was at its worst ever with me before that. I even felt a slight change during the first few days, though it took a few months back to where it was before.

To me it's a Miracle drug - but - I have developed several very debilitating chronic effects since starting it, not sure if due to the drug but I could be a combo of it & damage done when so ill & covid too perhaps. For a year-ish have had bad & funny heads; breathlessness, put on a load of weight, high BP, chronic cough (& have osteoarthritis & likely fibromyalgia too). In middle of tests etc. As you'll read, there are some higher risks of some nasties on these new JAKs & not a lot of trial results yet (though a recent one), so a bit unknown and time will tell! But in terms of RA it is certainly working for me!

GOOD LUCK!

Lilahloo profile image
Lilahloo

than you

Bella59 profile image
Bella59

Hi i have been taking filgotinib 20mg (jyseleca) for five months now.I find this med the best so far it has helped my hands.I have had no side affects.I have been on barcitinib,tofacitinib and they did nothing.I tried several biologicals and dmards.I still take metojet 15mg pen also.Hope this med will help you too.

Lilahloo profile image
Lilahloo in reply to Bella59

thank you x

Pastels profile image
Pastels

Hi,

I’ve taken Filgotinib for about 18 months. No side effect and such a great result. I can so so much more now because of the reduction in joint inflammation and I have so much energy.

Really wish you all the best when you start!

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