I have just found this forum and signed up, so wanted to say Hi.
I'm SneakySheepy and I'm 36 with a little boy who is 2, and lucky to have a very patient and supportive husband. I wanted to get in touch with others who know what I'm going through. I have been on Hydroxychloroquine for a few years with no success, so just about to start Sulfasalazine this week. Really hoping the new medication gives me some respite on the old joints! Apart from the joints, I also have difficulty with costochronditis so my chest muscles often hurt when breathing in (which is kind of intrinsic to being alive! Haha!) So they think it may be more of a combo of RA and Lupus rather than just the one. Anyway, that's me... Hi!
I'm thinking of signing up for the NRAS yearly subscription... does anyone find the info they get from it useful?
Lovely to meet all of you, and I will apologise in advance regarding my snail like pace at replying... I will get there , just not at the speed of light!
Much love to you all, and hoping that today is a 'good day' for all those sufferers. Take care xx
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SneakySheepy1985
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Welcome! With regard to NRAS I support them as they do invaluable work on our behalf: as well as supporting us. Their helpline is worth the membership fee alone.
I get costochondritis too so warm gentle hugs from me, I dread getting an attack of it😬 I need to learn to chill out about it but it hurts doesn't it !
There is so much Information here its been a so useful and of course lots of lovely people.
Its nice to have somewhere just to let things out so please feel at home here, lovely to meet you xx
I pay a yearly subscription, I found the nras helpline invaluable when I was first prescribed DMARDS and having issues. Sometimes you just need someone to say everything will be alright and point you in the right direction 👌
Fabulous... I will definately sign up then given all the positive feedback on the helpline. I definately need to reach out more I think... My husband constantly reminds me not to be so stoic (an ingrained personality trait!) and reach out for help when needed. Lovely to meet you xx
A welcome from me too - there are some very knowledgeable people on here, but its knowing that others understand -especially on the bad patches -that makes a differenceAnd NRAS do a great job .
Welcome from me and though i am not pleased you have had to join us you will be made very welcome and there is a lot of us here with loads of support for you. We all enjoy a laugh as well. I am on hydroxi and sulpha. I have done well on them. I can;t take MTX anymore,(long story) Well don't be afraid to ask anything how ever silly it sounds to you someone will have been through it. So welcome from me. xxxx
Hello and welcome from me too. It’s a club that no one really wants to join but an absolute god send when you do. Everyone is so supportive and the helpline is fantastic. I’m back on Sulfasalazine after being on it since I was diagnosed in 2004. I had a break for 2 years when it stopped working so well and tried Methotrexate but went back on Sulfasalazine early this year. Wishing you all the best and feel free to ask any questions.
Hi and welcome. I love the name. I am sorry you have joined the ranks especially as you have such a young family. That must be very difficult for you. I would definitely advise joining NRAS. You will get lots of information and read similar stories to your own. It sounds selfish and I don't mean in to as I wouldn't wish it on anyone but it is good to hear about other people having similar problems because it means we are not alone and we can help each other out. The subscription also pays for people who man the phone to speak to others when they are feeling really down, to research and offer support and advice and all the admin staff it takes to run NRAS. If you subscribe, you will be helping many, many people including yourself. Sending healing hugs. I Hope to speak to you again.
Hi Sneaky, welcome to this very useful forum. You'll always find a listening ear and somebody who has had similar experiences. You have joined NRAS, brilliant! You are helping to help any people and yourself. I hope Sulfasalazine will work well for you. Hugs.
I have been here a while but rarely post , just lurking and reading and learning from those who do. We can’t give medical advice though.
I started on Hydroxychloroquine in 2013 and had Leflunomide added in 2019 and Apremilast Dec 2021 when the Rheumatologist changed my diagnosis from Seronegative Inflammatory Arthritis to Psoriatic Arthritis. So far I am doing fairly well despite catching COVID first in 2020 and again 😣 last month.
Welcome! I rarely post, but always find the people on here warm, sympathetic and supportive. I'm just sorry that someone as young as you is suffering with this bloomin' condition.
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Wanted to say thank you everyone
Hello Nice To Be Here
Hello I'm an RA newbie
The comment I wanted to say today
Newbie here and to RA
