BENEPALI: My grandson has told me that after his... - NRAS

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BENEPALI

billybunter123 profile image
9 Replies

My grandson has told me that after his injection of Benepali , he gets a tremor over his whole body which does not go away , is this normal please ?

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billybunter123
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9 Replies
KittyJ profile image
KittyJ

I’d get him to speak to a doctor if he has a full body tremor all the time. I hope he’s ok.

medway-lady profile image
medway-lady

He should contact the doctor asap. It might be nothing or something either way he needs advice.

KittyJ profile image
KittyJ

billybunter123 did your grandson speak to a doctor? I hope he’s ok?

Happy5 profile image
Happy5

Needs to contact RA team about it. Has he read the info leaflet comes with the medication?

Chann profile image
Chann

I have been on Benepali for several years and never experienced anything like this. I would think he should report to his GP or RA team and see what they say.

Surrey_mummy profile image
Surrey_mummy

I’ve never got body tremors after injecting Benepali, but will always get a relatively large, raised lump at the injection site which lasts around 4 days (more so on my stomach than my thighs). It’s definitely worth having a chat with his clinical team about it asap.

Knit12 profile image
Knit12

Never had body tremors when on Benepali. He needs to phone or email his rheumatology team.

billybunter123 profile image
billybunter123

Thank you all for your answers , i have reported this , will let you know the outcome if it is of interest to you , he is a brave lad , he has had the condition since 7 years of age , but remains cheerful as can be , he is having his half term school holidays with us , so away from home

Dicorn profile image
Dicorn

I have been injecting Benepali for several years and I have never had any side effects. Such a shame for your grandson.

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