Private appointment with Rheumatologist : Short story... - NRAS

NRAS

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Private appointment with Rheumatologist

Evie3 profile image
11 Replies

Short story…. i am continuing with Rituximab after long discussion with Rheumy. He said the immunity blood test to Covid isnt helpful and doesnt tell the whole story. My bloods are excellent apparently. He insisted i have the Covid booster, which I did today. Will have flu vax next week. Must continue to take care 😷, but at least I wont be in pain.

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Evie3 profile image
Evie3
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11 Replies
rabbits65 profile image
rabbits65

Sounds like a successful visit , that’s good 😊

oldtimer profile image
oldtimer

You sound much happier about the outcome to your appointment. That always helps, being anxious and worried makes the pain and disability more difficult to manage.

Evie3 profile image
Evie3 in reply to oldtimer

Yes u r correct. Just needed a word with the professional. Much more relaxed but not relaxing taking extra care

ks1966 profile image
ks1966

Hi. When was your last Rituximab infusion, if you don’t mind me asking

Evie3 profile image
Evie3 in reply to ks1966

It was May…..so having bloods next week in the hope of next one in November

ks1966 profile image
ks1966 in reply to Evie3

That’s great. I had mine on June. Do you think we have enough B cells to mount a response to the booster shot? I’m trying to find out but it’s so hard to get answers

Evie3 profile image
Evie3 in reply to ks1966

I really dont know. Rheumatologist gave me hope 🤞. He said anyone with low immunity who happened to get Covid and was hospitalised…they give tocilizumab (cant spell) which helps. Be interested to hear what info u get

Neonkittie17 profile image
Neonkittie17 in reply to ks1966

You could ask your rheumy to check your B cells to see if they’ve returned before you have your third vaccine. That’s what I’m doing at the moment.

ks1966 profile image
ks1966 in reply to Neonkittie17

Thanks for the info. I’ll try and do that. Is there a specific test?

Neonkittie17 profile image
Neonkittie17 in reply to ks1966

Not sure exactly what comes under the B cell umbrella when testing but you should have your B cells tested a week before you go for a Rtx infusion and then two weeks after your infusion(s).

ks1966 profile image
ks1966 in reply to Neonkittie17

Thank you 🙏

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