I have read a few posts on here about PIP and was wondering how you would know if it is worth applying for? Somebody said to me once do i get it and i said no because my bad days are not all the time. Some days i can do normal day to day things (within reason) but obviously as you all know when you get flares you are totally useless.
PIP: I have read a few posts on here about PIP and was... - NRAS
NRAS has some useful booklets regarding benefits- These are Benefits and RA and PIP available in hard copy or electronic through the shop. They are free to, but to keep track we need to go through the shop
Hi the good days and bad days
it is the majorty of time on the questions and criteria If more than 1 criteria apply to a question
then the majority of time can be 20% on b to 30% on c and 10% on d etc and thats over 50 %
And the care side alone there is 10 questions you could get pip on that with 2 questions alone and its not all about good bad days
The mobility is straight forward if no mental health only 1 question able to walk upto 20 metres high rate
Upto 50 metres low rate
Safely .to an acceptable standard .repeatly or a reasonable time period
Useing aids as well gets you points that can mount up
Pip self test
Although not binding it can give you an indication to apply for pip
take the pip test benefits and work. And that will tell your their views on any award
And you can give email and get results emailed free to save
Or be anonymous as well and results instant
Thank you i will look at the self test first. When they say Aid’s what do they actually mean? Is it a walking stick?
Hi aids walking stick yes but thats makes not much difference for mobility with or without a sticks award wise unless mental health also .The aids for care could be
Stool for cooking
Theres lots more just an exsample
Aids usually get 2 points per question minimum points 2 but with a 4 pointer you should get an award
The self test shows you the points
Need 8 for an award
I didn’t think I would get anything. When I wrote how it effects me it reduced to me to tears. I got standard on both . It’s the little things that we adapt to make life easy that we don’t realise make a difference eg. At night I’m very stiff and use the radiator to help sit and rise. . Try base it on your worst days and say how many days are bad in general or how long a flare can last . Nothing to loose XX
Sorry to be a pain but i have been reading lots of different posts and information this evening on claiming PIP but where it says to make an appointment with your Rheumatologist to go through the claim with them, has anybody actually done that as i would be lucky to get an appointment with them about my RA let alone to go through a PIP claim with them.
No and I don't think in the current Covid climate they would thank you for it. Hopefully you have follow up letters after appointments that you could send (if they are helpful)?
I tried pre covid they were not interested. I was told to ask the nurse who said tell me what you want or write it yourself and I’ll copy it . I said no you know what’s wrong with me . It took the nurse 4 weeks to do.
Hi. I asked (by email) my Advanced Nurse Practitioner to write me a support letter. Listed the aids I used for each task so she could include them. Pacing and resting, recovery time; all are important. Also include any RA letters that back up what you are saying (from first appointment). My advice would be to be as clear as possible and explain as if to a child (!). Functionality is what they are assessing. Also how long you have had RA will make a difference to award length. Good Luck.
Majority of the time criteria is very important. You may be sparkly in the summer but unable to move in the winter for example. Have a think x
Maybe have a read on the above, Benefits & Work website. I found them very useful.
They are amazing…. Wish I’d known about them when I was first ill. Received pence from DLA despite being immobile for several years 🥺
A little word of advice when applying i wouldn't say that you have good days and bad days, I would rephrase to better days rather than good.
Hi there, I've been receiving PIP for 5 years. I think you should apply. The money is to help you deal with your condition. For example, getting a taxi instead of walking, buying better quality shoes, essential oils, pre cut vegetables to cook with, ordering Deliveroo when I'm too ill to cook, hiring a cleaner. The list goes on and these things make my life easier. When you apply you must tell them about your bad days and forget your pride - yes I have good days but the money (£60 per week) really helps on the days when I'm tired and in pain.
Thank you for your reply i done the pip test online and scored 14 so i will apply but the only thing that concerns me is trying to get a letter from my Rheumatologist because I am not due to see them until Dec/Jan.
Send copies of the letters you’ve had after appointments. I’ve never got a rheumy to do a letter specially, it’d never be done within the time frame for a start so I haven’t bothered.
Ok thank you for the information… do i download the form online?
You ring them for the form, take note though that there is a time limit on sending it back and it starts from when you call. Start making notes for the form now before you call, you can look up the questions online. Send the form back signed for so you can prove they received it and make a copy to keep for yourself as you can then use it to prepare for when you have your assessment. Good luck 🤗
To add to above, at my last renewal I gathered all my paperwork together before I phoned so I wasn’t overly stressed. Also when you phone up it takes about ten days to actually receive the form. Go online to find a copy of the form so you can do a rough draft before the ‘real’ one arrives. They started a NEW form this year, so make sure you source this as the questions are slightly different.
I cant find a copy online of the form to apply for PIP 🤷♀️
Sorry for all these questions but i have never claimed for anything in my life so i want to make sure I get it right…With these letters i have to send with my form how far on my records should I go back? and how many should I send as there are so many of them..And also on my last appointment which was a phone consultation in Dec 2020 the report on that one says i am in remission will this affect my claim even though my hand and feet are really disfigured hence why I don’t have the full use of them.
Hi you get different views on this even from dwp My own view
Id go back 10+ years and also put all meds from last 10+ years and all treatments and meds that did not work as well
and any courses .adaptions. physio. Ot anything
It gives them a whole picture
And this is one of the criterias they take into consideration to determine a lenth of an award
Also if applys the words
Unlikely to change in the long term
Thank you for the good advice… obviously I can’t send 10 years of appointment letters so do I just randomly pick some to send.
I got the citizens advice to help me with my pip form. I phoned them up before I got in touch with pip. They said to phone them up as soon as the form came through. They then gave me a phone consultation and they filled the form out online, asking me questions, then sent me the form to check before I sent it off. X
You focus more on your bad days, if it stops you doing the things that you would normally do. Also I find that other things have happened to add to the burden, things such as the recent loss of my mum, worries about covid, the affects of the jab, and medications I take. The stress of dealing with mums estate, and financial worries then fighting to get my money back when they took it off me. Isolation played a big part as well and not being able to get my appointments back on track. It all took its toll both mentally and physically. So I'm glad I fought for and got it.
Get a 100 sheets of paper 😊 to practice each question first say 6 to 10 sheets per question untill your ready and sure before you even touch forms
P s mind say a question example
2d applys to you you tell them
But 2c 2b may also apply to you
Very important you tell them this so they consider them all
And go on to do same on next question
Think of appeal also when filling form in
As if they are going to read it as well
Your more thorough that way and youll have everything on the forms
It’s going to take me forever to write out as i am right handed and my right hand is clawed so I struggle to hold a pen for more than a few minutes at a time. Oh well
You can add extra pages, this is what I did as I only have two functioning fingers on my writing hand. Writing is very slow and messy. I wrote a small bit or got my husband to and then continued onto a separate sheet which I dictated onto my iPad to print off. This seemed ok as long as it’s clear which question the answer is to.
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