Confused : So had my appt with Rheumatologist and even... - NRAS

NRAS

33,665 members41,726 posts

Confused

Hurting2012 profile image

So had my appt with Rheumatologist and even though my RA factor and ANA test was positive and my joint pain is in both sides he says seeing I don’t have inflammation I don’t have rheumatoid arthritis

15 Replies

Hi there, this is very new to me, so others might be able to offer more advice. Perhaps contact them again to explain why they think it’s not RA or ask what else it could be. My RF and ANA were positive, anti CCP was greater than 600 and my inflammatory markers weren’t inflated, but I did have the diagnostic criteria of having at least six areas of pain/ache - the EULAR score is out of ten - which is why I’m now on medication. Hope you get some more answers soon, but keep asking questions.

Hi Hurting2012. That doesn't seem right to me. If you are in pain and your RA factor is positive, then even if inflammation isn't obvious how can he just dismiss it? When I was first diagnosed, my inflammation wasn't obvious immediately but because I had been prescribed anti-inflammatories by my GP which seemed to reduce the pain short term but didn't resolve it, I was referred to rheumatology. There is also a family history of RA for me. My bloods didn't show inflammation either at first. It pretty soon did become apparent though. Did he offer any other explanation?

Hurting2012 profile image
Hurting2012 in reply to Biofreak

my aunt had rheumatoid arthritis as well. i do take motrin 800 3 times a day and it does take a little edge off however he said no inflammation and no swelling.

Biofreak profile image
Biofreak in reply to Hurting2012

Did he give you an explanation for the pain you experience or does he think it's all in your head? If it's not RA then what is it? I hope they haven't just dismissed you.

Hurting2012 profile image
Hurting2012 in reply to Biofreak

I also take anti inflammatory meds 3 times a day but he says osteoarthritis

Biofreak profile image
Biofreak in reply to Hurting2012

Well I have both RA and Osteoarthritis. I was diagnosed with Osteoarthritis in my shoulders in 1997 followed by RA a couple of years later. What I can't understand in your case is that you have the Ra factor but he still says you don't have RA! Think I would get a second opinion. Hope all goes well for you.

Hurting2012 profile image
Hurting2012 in reply to Biofreak

What he told me is that he doesn’t read too much into the bloodwork I’m thinking my gosh then why have it done

Biofreak profile image
Biofreak in reply to Hurting2012

Bloods don't always tell the full story but in your case I think it's a blooming good indicator.

Hurting2012 profile image
Hurting2012 in reply to Biofreak

I think so as well

Keep asking or see another doctor if you can. I has a similar experience and although I knew the pain wasn't right & wouldn't go away, my doctor was convinced it was 'all in my head'. I eventually got a female doctor who persevered with tests, I had ultrascans & eventually got diagonsed with RA (hereditary too as my mum has it). Best of luck & hope you can get treatment soon.

Hey there, did they do any scans? MRI or ultrasound? As others have said your inflammatory markers can be (and often are) negative. Particularly in early disease. Scans should be part of the work up however. Did they do any?Best,

Lily

Hurting2012 profile image
Hurting2012 in reply to lilyak

they did xra;ys of my hands and feet. by the way by googling my 3 little toes on right foot are claw toes and both feet my big toe curves inward so much so that my toe next to it overlaps. i also have the pain and stiffness in both sides of my body

lilyak profile image
lilyak in reply to Hurting2012

X-rays can very often show nothing, especially in early disease. An ultrasound or MRI can show inflammation, which would point to inflammatory arthritis. I would ask for an ultrasound, or see a different doctor. From the workup you've had so far, its impossible to say if its RA or not. I hope you can find a doctor who will do an ultrasound to look for inflammation.

Very interesting, Hurting, and I've heard of this sort of reaction from others - but the pain may not be caused by RA. A positive test for RF and ANA and anti CCP do not always indicate RA - many people have these positive tests without RA.

Your symptoms must be telling you something so keep yourself informed. Whatever it is you need an answer.

Good Luck.

I had my RA partially diagnosed by an Isotope bone scan of my entire body many years ago. 1995. Not sure if they do those now but the scan showed the hot spots of inflammation which corresponded to my pain. My bloods also were delayed in showing inflammation for 9 months.

You may also like...