Toczilizumab: Just had a letter telling me that because... - NRAS

NRAS

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Toczilizumab

Pat9442 profile image
5 Replies

Just had a letter telling me that because of shortages ( due to drug being used for Covid patients) my infusion will be every six weeks instead of four! Unhappy about this as usually I am beginning to hurt before the four weeks is up.

Oh and if you self inject that is changed from weekly to fortnightly

Grrrr….

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Pat9442 profile image
Pat9442
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5 Replies
Green230461 profile image
Green230461

You are just lucky I guess! So sorry to hear this move over to baricitinib! It works wonders 🥰

Gnarli profile image
Gnarli

Grrrrrrr indeed.

Ozzy profile image
Ozzy

I had a letter saying that there are shortages but I have not been told to inject fortnightly…had a problem earlier this year with my delivery so I was a week late with my injection, I was not doing so well by then.

Kershon profile image
Kershon in reply to Ozzy

I have also had that letter but it doesn't mention inject fortnightly instead of weekly. It just says delveries will be monthly but they are monthly anyway so a bit confused.

Ozzy profile image
Ozzy

I have 8 doses delivered at a time, so I am guessing it will be 1 box instead of 2

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