Feeling cold all the time: Hello everyone, I feel cold... - NRAS


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Feeling cold all the time

Goldsky profile image

Hello everyone, I feel cold all the time and struggle to get and stay warm.

I wonder if anyone else feels like this.

Thank you and best wishes to you all.

36 Replies

It's a purely idiopathic reaction but when I'm heading for a flare I go dead cold and have to snuggle under a heated throw. It may not be the same for you but if you've been really active or forgotten to have a meal that could also be the reason. Wishing you well

Goldsky profile image
Goldsky in reply to Gnarli

Thank you Gnarli, it is just a nuisance. Hope we will soon have some warmer weather, that will help.

I’m the opposite Goldsky I’m boiling all the time 🙄

Goldsky profile image
Goldsky in reply to J1707

It’s really strange isn’t it. Best wishes.

I’m always cold , people come in my house and always say it’s really hot in here , I just say yep I’m freezing , I have electric blanket on my bed , put it on 30mins before I get in it lol , so yep always 🥶

Goldsky profile image
Goldsky in reply to essexgirl

It’s a pain isn’t it. My poor husband is always hot. Take care essexgirl.

Yes always freezing too, super annoying when everyone else in the house is warm.

Goldsky profile image
Goldsky in reply to Pinkypie2018

It is annoying Pinkypie. Best wishes to you.

At the peak of my RA, I was always cold too. I am from a tropical country, all of us in the aircon room but I had to use blanket to cover myself and I slept on an electrical blanket too. However, once RA was under control, I felt normal again.

Goldsky profile image
Goldsky in reply to Amy_Lee

Thank you for that Amy. I feel my RA is quite well controlled but like you am always covered in a blanket or two and have to wear loads of layers and that’s indoors. Take care.

Amy_Lee profile image
Amy_Lee in reply to Goldsky

My experience was different here, I have been back to normal when my RA was under control. May be you have something else? I am not in the position to share then.

Have you had your thyroid levels checked? I have Hypothyroidism and before medication felt cold even in summer. I hope you find a solution and get that warm feeling.

Goldsky profile image
Goldsky in reply to stbernhard

Thank you stbernhard. Other people on the forum have said I should get my thyroid levels checked, I will. Best wishes.

I’m always cold. It’s so annoying. I’ve been meeting family & friends outdoors for food/coffee & I absolutely freeze. Once cold I just can’t get warm again. Hot water bottles electric throw & coal 🔥 are the love of my life!!

Goldsky profile image
Goldsky in reply to Caza

Yes Caza, I am just the same. We are waiting until we can go out and eat indoors. I would definitely freeze to death outside at the moment. People have said I should get my thyroid levels checked, so I will. Take care and thank you for replying.

Caza profile image
Caza in reply to Goldsky

I’ve had mine checked. All fine so not that with me.

I get very cold every afternoon if I am sitting no matter if I've been active all morning !

Goldsky profile image
Goldsky in reply to vonniesims

Yes me too vonnie. I often have a little nap after lunch but I have to be really wrapped up in blankets. Take care

When I was still struggling to get my RA under control I was always cold. I’m much better now, but when I’ve been out in cold weather it takes me ages to warm up again and thaw out. I I usually end up going to bed for an hour to warm through.

Goldsky profile image
Goldsky in reply to CagneysMum

Horrible isn’t it CagneysMum, mind you the weather we have been having doesn’t help either does it. I never feel as if I have enough layers on. Will get my thyroid levels checked, others have said it could be that. Best wishes.

CagneysMum profile image
CagneysMum in reply to Goldsky

Good luck and take care x

It's horrible isn't it, I get this all the time, I thought my RA was under control but now I'm wondering. I just had to snuggle on the sofa with loads of throws over me. Have you spoken to the nurse or consultant? Hope you get it sorted. X

Goldsky profile image
Goldsky in reply to Stowe

I feel as if my RA is under control really but this feeling freezing cold persists Stowe. Others have said I should have my thyroid levels checked so I will. Best wishes.

Stowe profile image
Stowe in reply to Goldsky

That's not a bad idea to have your thyroid che ked as well. Good luck x

I agree with the other posts here. For me if my RD is not in control with the medication I am taking or have a flare, I feel freezing right through to the bone. As it gets under control I begin to feel warmer until when it is under control I feel very warm. When outdoors if I get very cold it will take age for me to warm up again. Take Care.

Goldsky profile image
Goldsky in reply to Recorder500L

My conditions are fairly well controlled with the meds I am on Recorder, but I still am freezing all the time. Cold, wet days like this don’t help either do they. Oh well could be a lot worse, I know that. Best wishes.

I think I’m more lizard than human some days! I bought a snake water bottle from Amazon two feet long and bendy so it goes around neck/back/shoulders and warms me up. Went to visit my sister pre covid she and my brother in law plus husband in tee shirts and shorts. I had two jumpers heavy trousers socks and cardigan! They just laugh and sit me by the radiator now 🌺

Goldsky profile image
Goldsky in reply to Green230461

Yes Green, that is exactly how I feel. This cold, wet weather doesn’t help either does it. Best wishes to you.

I usually have socks on my feet around the house and I have a soft flexible heating pad over the back of my chair that I turn on while sitting either placed across my shoulders or on my lap. It turns off automatically in case I fall asleep. Those are my only two tricks. I also have a hard time washing my hands in cold water. Trying to always take my thyroid meds at the same time everyday also may help. I wish you the best. It’s awful feeling cold all the time.

Goldsky profile image
Goldsky in reply to BonnieG123

I think I need to get my thyroid levels checked Bonnie. My mum has given me a heated over blanket which is fab. Take care and thank you Bonnie.

BonnieG123 profile image
BonnieG123 in reply to Goldsky

Thyroid and RA seem to go hand in hand. Yes, get it checked. Best wishes.

I'm always cold all the time. I have really low blood pressure too. I've had my bloods checked for thyroid issues etc. Nothing found. I'm that cold I've warn a coat in Tenerife!

Goldsky profile image
Goldsky in reply to Angjoplin

Oh poor you. I have high blood pressure so it’s not due to that either. Perhaps just one of those things.Best wishes Angjoplin

When I was in remission last year I felt much warmer. Now my RA is active again, I’m feeling the cold. I’d not connected the two things before.

No I hadn’t either Blueskysunshine. Perhaps my RA is active again or my thyroid levels are low. Anyway, very best wishes to you.

And best wishes to you to Goldsky - thank goodness it’s warmer today.

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