Hi I'm new on here. I have 3 auto-immune conditions, including R.A.
I was just wondering if anyone had a flare up after their covid vaccine? I had a pneumonia jab in September, a flu jab in November and the covid vaccine 4 weeks ago and the last few weeks I have been really struggling. It may be unrelated but I just thought I would ask. Thanks.
Hi Deb, I had my Rituximab infusion in early September and then my pneumonia one a couple of months after and then my flu one two weeks after that. I felt wiped out for around 5-6 weeks, so not surprised you feel tired and you’ve had your covid vaccine too. Hope the fatigue improves soon. 💗 I wouldn’t say I had a flare up after my vaccine two weeks ago but my knee and shoulder and hand .. worst affected .. did hurt for a couple of days but that wore off quickly. Are you due a rheumy review or blood tests?
Yes I called last week and I’ve got a phone appointment mid March . I was very ill with shingles and c diff last March and not really been the same since but I’ve got far worse the last couple of months I think and particularly the last few weeks. I take enbrel and methotrexate which Have generally worked for 16 years. Maybe due for a change? Thanks for replying.
You have lasted such a long time on those meds, and sometimes you feel reluctant when you need to change (but another med often gives better results and more relief 💗) but wait till your rheumy looks at you/chats with you and looks at your bloods etc as you don’t know if it is RA meds waning and the vaccinations could have started the fatigue. Before taking anything else into account I know Fentanyl makes me tired although not in the same way it used to as I’m used to it now I think. I had shingles October 2019 and a milder case but I did feel shattered for a couple of months. You’ve had a combo of things which all point to fatigue as well as CDiff so hope you can discuss all this in March. Hope you have some pain relief to tide you over.
Thank you. Do most people have to change meds? I don’t know any body else with it. I am reluctant but maybe that’s what’s needed. All I’m taking is paracetamol as I had c diff last year which was awful because of too many Antibiotics and stomach liners can bring it back again so terrified that will come back.