Benepali: Hi I have been on Benepali for six weeks now... - NRAS

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Benepali

Sharonbernt profile image
16 Replies

Hi I have been on Benepali for six weeks now. Can anyone tell me if I should be classed as extremely vunerable and should I be isolating I haven’t received a letter to isolate. Thank you.

16 Replies
Kerensa21 profile image
Kerensa21

Hi Sharon, can you email your rheumatology so you know for sure, for you personally? So many conflicting tables out there. I’m on benepali and am CEV but have other issues. You can register yourself on govt site:gov.uk/coronavirus-shieldin...

There is a ‘not sure’ option on it so fine to do this anyway; I did at the start x

Sharonbernt profile image
Sharonbernt in reply to Kerensa21

Thank you I will do that

helixhelix profile image
helixhelix

It’s very variable as also depends on age, and other conditions you have and your overall state of health. I am on the equivalent plus MTX and have never shielded and am not classed as particularly vulnerable now.

Speak to your own doctors who know your medical history.

Sharonbernt profile image
Sharonbernt in reply to helixhelix

Thank you

Bethany02 profile image
Bethany02

I was told to isolate but then told no it was ok and I am on sulphazalizine and benepali

Sharonbernt profile image
Sharonbernt

Thank you

Whezziewhoozie profile image
Whezziewhoozie

Have a look at rheumatology.org.uk/Portals...

Sharonbernt profile image
Sharonbernt in reply to Whezziewhoozie

Thank you

juliea793 profile image
juliea793

I am on a similar drug and have been told to shield. I was told that back last spring by my Rheumatology dept. So please speak with yours to get the right advice...I get letters to say I am clinically vulnerable..

Sharonbernt profile image
Sharonbernt in reply to juliea793

Thank you

Fra22-57 profile image
Fra22-57

I am on a biologic and have been informed I am since first lockdown.Its to do mainly with being on a drug that suppresses the immune system

Sharonbernt profile image
Sharonbernt in reply to Fra22-57

Thank you

Salamanca21 profile image
Salamanca21

Of course. You're immunosuppressed. Sometimes the letters are delayed. Tell your doctor, but you must self-isolate.

Sharonbernt profile image
Sharonbernt in reply to Salamanca21

Thank you

Boxerlady profile image
Boxerlady

Only your rheumy team can give you personalised advice but saying that, when mine said that I was CEV and I challenged it, they admitted that they just put all the their patients on the list as they thought that it was quicker... I've made the personal decision to strictly social distance rather than self-isolate; I'm 60 and on DMARD triple therapy. We each need to do what's best for us - both physically and mentally.

Sharonbernt profile image
Sharonbernt in reply to Boxerlady

Thank you

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