Baricitnib side effects

Well I’m on week 7 now and my joints are good and fatigue gone all positive.Christmas Eve my hands swollen and still are but 2 days now my right leg doesn’t feel like it works properly and yesterday I couldn’t get my shoe on my right foot my leg and ankle are swollen tight and hot . I also have had extreme dizziness which I need to lie down and sleep. This photo my leg and foot last night

[Nessa28]

Please phone gp it could be cellulitis. Is it hot to touch , is it red , do you feel fluey . Elevate the foot call the doctors x

[Hidden in reply to Nessa28]

Thanks for the reply. I did feel fluey the last few days . My hubby said it was hot all night but it’s not red . I’ve a permanent heaviness in my calf and an ache .

[Marionfromhappydays]

Have you contacted your GP or rhematology team ? I would x

Sorry you are having a hard time

[Hidden in reply to Marionfromhappydays]

Left message with the team but I will be one of many as they only return to work today. Thanks M x

[janmary]

You need a doctor appt - or to call 111 for advice I think. I’m glad the Bari is working though!

[Mmrr]

It might be worth contacting NHS111 as your rheumatology team could be a while in responding to you. Best wishes to you.

[Boxerlady]

I'd definitely get it checked ASAP if I were you.Good that things are improving otherwise though 😊

[Ms-D]

Sending you lots of love 💘 and hugs xxx

Hope you get some relief today x

[Hidden]

Get checked please x

[Summerrain14]

Oh goodness I really do hope you get some advice today. Hope you are on the phone to 111 as I type. Thinking of you x

[springcross]

That needs looking at J. I think elevate and 111 as the others have said, as rheumy maybe inundated but I hope I'm wrong there. 🤞 x

[Monkeysmum]

Mmm, I’m not too sure that sounds like side effects J1707. Could be a flare, or even something totally unrelated to RA like others have said. If you have been feeling fluey for the last few days I would agree that might be best to get checked? Whatever you decide to do, hope you feel better soon. Xx

[bubblyalex]

I am sorry to read and see this. Do call 111 for advice... like the others have said. I hope it will all be ok 💕

[Pippy25]

Hope someone answered the message you left or you have managed to get some advice. Let us know how you have got on and how you are. Take care x

[Hidden in reply to Pippy25]

Hi Pip still waiting they do tend to ring late have been known to ring at 7 pm. Advice from GPs was to contact team and if things got worse ring 111 . I’ve done nothing but rest it today it’s no worse but I will ring 111 if things change but I know they will tell me to contact my clinic. Reading up on the side effects has confirmed it’s high likely Baricitinib. Thanks for asking will keep you posted xx

[Kags1068]

Wow - that does look very swollen 😧 I'm afraid I don't have experience of baricitinib so can't comment on that, just wanted to say sorry you are having to put up with this, and I hope your team contact you soon xx 🤞

[Ms-D]

How are you feeling today hun?

[LinaM]

Just saw this post ... oh that looks sore ! 😓 as others have said you def need that seen to ... please let us know how you are xxx

[RAexperiences]

HiI had to stop baracitinib for that very reason. My feet and ankles were swollen to above my knees as well as wrists and hands. Completely unrecognizable. I gained 12 pounds of edema. Because of the black box warning re: embolisms, my rheumi agreed that i stop right away. It was also messing with my kidneys. I was not getting benefit from the drug either. Best wishes to you

[Hidden in reply to RAexperiences]

I think it is the meds and I have had swelling of the hands too . I’ve suddenly gained 6lb . I am disappointed as my fatigue has gone . Oh well back to the drawing board . Thanks you have reassured me x

[Hessie5]

Hi J107 - just read your post, hope things are better for you now and your Rheumy team have come back. I would have thought the meds but of course as said see what they say. Wishing you a swift recovery from this - Hessie