AS flare up on Benepali

[kerryhannah]

Has anyone who has AS and is on Benepali had a flare up before? Since being on Benepali (3 years), I have basically not felt my arthritis unless I had to stop the injections for being unwell (as per consultant advice at the time). I have been injecting as normal but today am really feeling the AS symptoms. Will call rheumatology on Monday if it’s still the case but wouldn’t mind hearing of other people’s experiences? Also worried that the normal support might not be in place?

[Aloquifiqie]

JelloZ my Benepali stopped working after taking it for 3 years. I’ve come off it completely now and then my RA went through the roof whilst I was waiting for a new drug - a jak inhibitor. Now waiting for that to kick in. But before Benepali stopped working, my RA was totally under control.

[kerryhannah in reply to Aloquifiqie]

Oh gosh, I hope this is not the case! Thank you for replying- will call tomorrow and talk it through with the team. I have a 1 year old so really don’t want to not have it under control as well as bending over and running around after her!

[Aloquifiqie in reply to kerryhannah]

Ah that is tough with a one year old. Don’t worry. Mine went through the roof because of a big gap between not taking Benepali and getting going with Baracitinib. I was holding out thinking it made me more vulnerable but in the end the RA was too active. My Benepali slowly, slowly started to be less effective. I noticed symptoms coming back and I sat with it for about 6 months to check it wasn’t a blip. Nothing has to happen quickly. Just keep an eye on it and make a decision once you’re sure. Your story could be completely different to mine.