Well it’s been a not so smooth ride so far. I was diagnosed with aggressive seropositive RA back in August (very quickly too 👍). Had a blood test and there was some concern over my neutrophil levels being way too low, so, a bone marrow biopsy’s and several other tests later it was decided that it’s just me. Was put on MTX and Hydroxy and folic acid. 5 weeks later (nov/dec 2019) was told to come off meds as neutrophils went down to 0.3.
I’ve been off any medication since then and gradually over the last few weeks my hands/shoulders/wrists and elbows have got worse and worse. I’m a self employed hairdresser so not good.
Finally I have my appt with my Rheumy Doc who is ACE and I arrived with claw hands as I couldn’t straighten my fingers. He gave me a steroid jab and has informed me that the next plan is to have a self injected drug called ‘Etanercept’ so now waiting for a nurse to call and give me a lesson on how to do it all.
So that’s me and my journey so far. I’ve got to admit I think from the stories I read I’m extremely lucky. I have been well looked after at the Nuffield in Oxford and have nothing but praise for everyone I’ve seen. (Hopefully I’ve not spoken too soon lol)
Stay well,happy and as pain free as possible all xx