anyone else have this: My brother in law was diagnosed... - NRAS

NRAS
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anyone else have this

listellor
listellor

My brother in law was diagnosed with MN and I saw him deteriote and finally go and my father had copd and I saw him deteriating and he went , however I do seem to go into a depression when the meds have to be increased . also Another thing in the back of my mind is my mother cared for my father and helped with my brother in law also had to go up and down the motorway for my aunt before she passed away . I look into the future and all I can see is it getting worse and I don't want to be a burden on my mother she has done more than enough for the family and my brother in law . I find it difficault to bring it up when I see the doctor as well

4 Replies
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I am sorry to hear what you have been going through as a family. It must have been difficult for you all. Have you spoken to your doctor about any of this and of your concerns for the future? I know how hard it is sometimes when there may be lots to raise or ask your doctor at an appointment and wondered if spending a few moments jotting some questions you want to ask or concerns you may have would help? That way if you are struggling to bring things up with the doctor, you have already got the questions there and could perhaps say I've written down some things I would like to ask you. Again your doctor may be able to sign post you a support service which may help you to talk over your worries and concerns for the future. There is also the NRAS help line who you could have a chat to, they have been helpful to me in the past. Take each day as it comes and try not to think too far ahead as none of us can be sure what the future holds. Small steps each day and hopefully the doctor will be able to advise and support you. Take care

Very good advice from Pippy 25. I think a lot of people feel like this at times of sadness,stress, illness and so many varied reasons. You are most definitely not on your own in feeling like this. Take Pippys advice and see your GP. So many people suffer in silence but some counselling may make all the difference. Just talking can help.

Pippy25
Pippy25
in reply to Biofreak

So true, your post says that you are not alone in this, just talking and opening up to someone is a good starting point.

Having a long term condition is like a bereavement and needs help and support to work through. Don't be afraid to ask for help in coping with effects of having to face an uncertain future.

But also remember that many people live well with their Rheumatoid Disease and can have a long and rewarding life. I have been amazed that I have worked hard, played hard and survived to what would previously have been regarded as quite an age to enjoy a very fulfilling retirement, not at all what I feared when first diagnosed about forty years ago!

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