First chest infection on Baricitinib : I’d been on... - NRAS

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First chest infection on Baricitinib

bernese1225 profile image
6 Replies

I’d been on Baricitinib for 2 years on 17/12/19 and to the day I’ve luckily had no infections. I woke up on the 17th with chest pain and a hacking cough. I saw a GP the same day and he said my lungs were clear and my Sats were fine. BP was borderline high. That night I went to bed and started to shake with the cold then came out in cold sweats but felt red hot. I had a fever 😞 I managed to somehow get some sleep and my daughter rang in the morning and I couldn’t speak, I’d lost my voice. I can’t wait for hubby to get home tomorrow, it’s pretty scary being alone and feeling so unwell. I saw my GP last night and she gave me antibiotics. Fingers crossed they work fast, I’ve never been off Baricitinib in the 2 years and I’m not sure how my RD is going to react.

I’ve not felt this poorly in a long time but it’s put the cherry on the cake for this year. I watched my daughter go through the trauma and pain of a miscarriage in May, then she had complications and needed a D&C. She is struggling emotionally and I can honestly say I’ve felt all of her pain and it’s killing me inside. I hold it together for her but all I want to do is scream at the universe. Sorry for rambling, I’m just praying 2020 is a better year.

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bernese1225
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6 Replies
Amy_Lee profile image
Amy_Lee

Dear Berbese, I am very sorry for both of you and your daughter, you need to support each other to move on. During the seminar in the hospital, I came to know that RA likes to attack the lung, hence this must not be taken too easily.

helixhelix profile image
helixhelix

Please tell your rheumy team and tell them what antibiotic you have been prescribed just to be on the safe side. You GP sounds quite cavalier! Anyone on a biologic should be treated seriously as they should know that the symptoms of serious infections can show in a different way with us - so for example our temperature may not reflect how ill we are. Well that’s what my alert card says!

bernese1225 profile image
bernese1225 in reply to helixhelix

Thank you. I don’t have an alert card, I’ll ring Rheumy this morning and let them know.

sylvi profile image
sylvi

Oh my darling it has been a hard year for you and your family. Send your daughter my heartfelt hugs and hope it won't it won't be long before she falls pregnant again. I hope you soon recover from the infection soon. I have had two chest infections this year alone. So hugs from me.xxxx

bernese1225 profile image
bernese1225 in reply to sylvi

Thank you Sylvi it means a lot xxxx

wishbone profile image
wishbone

Hope you soon improve bernese. Sorry about your daughter. I remember how it affected my wife was when she miscarried our first baby.

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