Rash: Hi everyone. Hope you're doing ok. Have recently... - NRAS

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Rash

Sumdy profile image
24 Replies

Hi everyone. Hope you're doing ok. Have recently started triple therapy (methotrexate, hydroxychloroquine and sulphasalazine) and have developed a rash. I've left a message with the rheumy nurse but was wondering if anyone here has had this problem. I've taken antihistamine and applied copious amounts of moisturiser.

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Sumdy profile image
Sumdy
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24 Replies
Paula-C profile image
Paula-C

I get a rash on the tops of my legs, well it's more like hives. I was referred to a dermatologist and was diagnosed with urticaria, it's something that I've just got to live with, think it's connected to RA.

On saying that any rash should be investigated. I remember that I once read that hydrox. can cause skin problems. Hope you get some answers soon. x

Sumdy profile image
Sumdy in reply to Paula-C

Thank you Paula-C

Deniseelk profile image
Deniseelk

I started Hydroxychloroquine first and found after being on it for 2 weeks I had a few days days of what I would describe as a hive type rash. It would appear mainly on my face mid morning and last a few hours then fade.

I would possibly also comment that when it happened I was probably slightly warmer... first time I had just finished my hour physio session ( on wrist) so not sure if that had an effect too.

I decided I would contact Rheumatologist if I had it for 4 or 5 days but it passed on day 3... no further issues.

Could it just be your body adapting and accepting the new meds?

Take pictures and diary any pattern / time of day/ new shower gel etc and don’t hesitate to call your Rheumatoid team.

Sumdy profile image
Sumdy in reply to Deniseelk

Thank you for taking the time to reply Deniseelk. Nothing new in my life except the new meds. This is 4th day of rash I think. Really hoping that it settles as I think the triple therapy may be working. Will wait to hear what rheumy nurse says when she phones back. Have a good one 🙂

oldtimer profile image
oldtimer

I had an allergic rash (urticaria) with both sulphasalazine and hydroxychloroquine (separately). Check with your medical team.

Sumdy profile image
Sumdy in reply to oldtimer

Thank you oldtimer. Waiting on rheumy nurse getting back to me. Did your rash go away? Did you stay on meds?

oldtimer profile image
oldtimer

both stopped.

Sumdy profile image
Sumdy in reply to oldtimer

👍

Sumdy profile image
Sumdy

Thank you. Good to know it can clear up 🙂

I use that for my Rheumatoid Vasculitis Ajay.

I was on Hydroxy (by itself) - didn’t develop a rash, but did develop severe itching, and eventually had to stop taking it.

Sumdy profile image
Sumdy in reply to

Really hoping it's short term YanniBaci as even though it's early days, it does seem to be helping. Fingers crossed. Wishing you well 🙂

Sumdy profile image
Sumdy

I use Hydromol Ointment which is probably the same sort of thing?

helixhelix profile image
helixhelix

When I started on triple therapy I became hugely sun sensitive, and the slightest exposure brought me out in a rash. And I blistered if too much sun. This did slowly calm down, although I remained pretty sensitive. Then when I stopped sulphasalazine in calmed down further. So it could be a temporary thing, but even so talk to your medical team.

Sumdy profile image
Sumdy in reply to helixhelix

Thank you Helix but it can't be anything to do with the sun. I'm in Scotland and where the rash is....all covered. 8 degrees just now even though sun is shining! But like you say hopefully a temporary thing. Still waiting on rheumy nurse getting back to me. Hope all well with yourself 🙂

helixhelix profile image
helixhelix in reply to Sumdy

Well you do sometimes get sun in Scotland..... 😀. Hope you hear back tomorrow .

After being on MTX and HCQ for 3 months, my consultant added SSZ. No rash, but I got tinnitus after a month. Stopped SSZ and got slight improvement. Stopped HCQ a month ago. Still have tinnitus. Hope your rash goes away.

My philosophy is that I care more about my welfare than even the kindest of medical staff (and mine are super-kind), so it's up to me to tell them if there's something I can't tolerate. My consultant is always telling me there are plenty of other drugs, so don't put up with something that is adding to your suffering.

Sumdy profile image
Sumdy in reply to

Thank you Bacharia. I have had tinnitus for many years long before RA diagnoses and meds. Can't say that it's getting any worse. The rash I feel I could put up with if I knew it would go away before too long especially as the meds seem to be helping. Will wait and see what rheumy nurse says. Hope you're having a good one

I always get mine on prescription as I use it as a soap replacement.

Sumdy profile image
Sumdy in reply to

Me too. Wonderful stuff.....🙂

You're right. In the end, we have to decide which bad bits we can tolerate in return for the good bits. Can't win all aspects. Onward and upward!

Virg69 profile image
Virg69

Funny you should say that as I am on the same drugs and I have developed a rash on my chest that is very itchy and won’t go away

Sumdy profile image
Sumdy in reply to Virg69

Rheumy nurse got back to me and is going for have a word with consultant. I'll post what he says Virg69

Virg69 profile image
Virg69 in reply to Sumdy

Cheers

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