Flu jab vaccine or not for RA patients on Methotrexate? - NRAS

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Flu jab vaccine or not for RA patients on Methotrexate?

regina79
regina79
121 Replies

Hi guys,

what's your take on having a flu vaccine (non-live)? Should RA patients on Methotrexate have it to prevent flu turning in something worse, or is not advised?

I asked my new NHS Rheumatologist and he said 'No. They only advise to children, elderly an vulnerable patients'... But I'm not sure that he understood why I asked him.. I asked him because RA people taking DMARDs are prone to infections and so are vulnerable. I don't mind paying for it, but I'll just like to know if it's necessary. I'm seeing my private Rheum. in October so I'll ask her too... I bet they will have once again different views!! :O

121 Replies
oldestnewest
charisma

Always recommended by Rheumatology so I have had it every year since 2015. 🙂

We are vulnerable with RA and DMARDs!

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regina79
regina79
in reply to charisma

That's what I thought.. but not sure why he said NO. I guess he wasn't thinking of the RA and meds factor.. x

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helixhelix

My rheumatologist recommends I have it annually. And I also had the one-off pneumococcus jab when I started MTX

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regina79
regina79
in reply to helixhelix

Ok then I might do that. Is your free on the NHS? x

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helixhelix
helixhelix
in reply to regina79

I don’t live in the UK anymore...

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regina79
regina79
in reply to helixhelix

Oh okay x

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regina79
regina79
in reply to helixhelix

What period of the year is it best to do it ? Does the vaccine help you not having a crazy flu? x

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kathylcw
kathylcw
in reply to regina79

Most rhemys WANT ALL of us to have especially on biologic etc.... ask specifically for YOU. Remind him of meds and WHY you r asking. I’m in S Tx and flu doesn’t usually start till oct nov, but flu clinic, giving vaccine have already started because flu and virus’ are all over this year along with pneumonia

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regina79
regina79
in reply to helixhelix

I called the GP and Receptionist just told me to ask the Chemist as they know who is eligible or not and if it's recommended. x

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helixhelix
helixhelix
in reply to regina79

In UK it’s free for over 65s at chemist. When I was in UK I used to get it done by GP for free.....but first year had an almighty row with receptionist about it! She said I wasn’t eligible so I demanded to speak to a doctor who confirmed I was eligible.

Best to have it done around now - I think this year’s vaccine will be available any day now. (It changes every year)

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regina79
regina79
in reply to helixhelix

Yes receptionists don't always know... I'll see what the chemist says and then based on whatever he says I'll check with the GP or not!

But anyway.. it's not super expensive: £12 apparently. x

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emma88
emma88
in reply to regina79

You shouldnt have to pay as far as im aware anyways, ive not paid for any of mine, my nurse who does my monthly bloods always does it at the same time when its due :)

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regina79
regina79
in reply to emma88

Maybe I should call the hospital... Cos that's where I have my blood tests done. x

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AgedCrone
AgedCrone
in reply to regina79

Regina... Are you living in the U.K.?

I think you should make an appointment for a consultation with your GP.

You have told us your N.h.s Consultant rheumatologist ...... says you. shouldn’t take folic acid six days a week, and now you say he’s told you not to have the influenza vaccine.

This seems to go against all the advice most of us are given.

You really should have a talk with your GP.....write down a list of all the things you have written on here saying your rheumatologist is against you getting or taking, & ask him to explain to you why he is saying these things.

You had better wait until you are 100% sure before you have the Flu vaccine.

Get on the phone first thing & make the appointment.

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regina79
regina79
in reply to AgedCrone

My GPs don’t give a ****, with all the respect.. they sent me home crying when I asked for a private referral to see my first Rheumatologist with my work company private medical money..! Imagine that. They said that they’ve been knowing me for a long time and that I’m a very “anxious” type and I suppose they meant an “hypochondriac”.

I gave up on docs in this country.

I’ll just ask my private Rheumatologist and see if she has some sense or care at least. To me it’s a waste of time to see my GPs. I may as well stay at home. X

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AgedCrone
AgedCrone
in reply to regina79

I can only suggest you go in to your GP surgery quietly & calmly and ask to speak to the Practice Manager...& explain what you need to know. If you are over anxious & have a bit of a rant ...that won’t really help...now will it?

You keep on asking if things are available on the NHS......have you recently come to live in the United Kingdom and are not completely sure of how the NHS works?

You are entitled to a referral to a Private rheumatologist via an NHS GP....but once you have been diagnosed with Rheumatoid

Arthritis your company Private Medical Insurance will not necessarily cover payment all your treatment. In their eyes RA is regarded as an incurable illness,& they only pay for illnesses with a proven recovery record. I don’t know of any private medical insurance company that pays for drugs for outpatients..... they only pay for your drugs if you’re actually in hospital.

After a private diagnosis most people see a rheumatologist on the NHS....where you pay the normal £9 per prescription for all your drugs.

So take a deep breath & see if the Practicd Manager can help you.

Getting so stressed is the worst thing for you right now. Try to relax & phone or go in to you GP practice as soon as you can manage to.

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regina79
regina79
in reply to AgedCrone

I never said that I was going to get treated privately forever. I was talking about when I first went to see the private Rheum. And I was kindly asking my GP to refer me to a private.

I am now with the NHS.

And btw, I paid exactly the same money with the private and NHS prescription services: it’s £18 for 2 items, Methotrexate and Folic Acid. Private prescription was also £18. Which I was actually surprised about it . I’m on this forum also to rant.. sorry 😐 But you don’t have to feel like you need to respond to everything I publish and write. However I really do appreciate your support. But if I feel like ranting and I can’t do it at my docs or at work, this is the reason why I also am part of this forum.

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regina79
regina79
in reply to AgedCrone

And I’ve been in the country for over 15 years now but GPs in London are just not very nice. And I’m not the only one saying this. That’s why I rather not bother with them. Besides they change rules on what’s covered

and what’s not covered all the time. Not much is covered anymore. I’ve already complained once about one of the GPs being awful and putting me into tears. This is the second time and they haven't learned yet. What can I say. I give up on this city’s NHS. Unless I complain Once again. But it’s stressful To go through that process again

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AgedCrone
AgedCrone
in reply to regina79

Unfortunately GPs aren’t in charge-they can only provide what is available on the NHS.... & as you say, recently there have been a lot of changes.

As you must know there are fewer & fewer GPs, , but more & more patients, so unfortunately nobody gets enough time to sort all their problems these days.

Maybe you could try changing to another GP practice in your area.....a change of doctors often helps.

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regina79
regina79
in reply to AgedCrone

Yes, sadly that’s the truth. And I get it. It’s not their fault. Nonetheless this does not give them the right to treat people with little or no compassion and being mean to them.

They can simply say that unfortunately they can’t help cos of the NHS. They don’t need to blame it on the patient’s and use words such ‘anxious’ Or hypochondriac; when people are suffering and struggling and it’s real.

I don’t blame GPs, but I do blame them for sending me home in tears.

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whaleroad
whaleroad
in reply to regina79

Where in London are you? There are good GPs in the capital, I promise! If yours aren't looking after you, you can change to another surgery.

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regina79
regina79
in reply to whaleroad

Im in North London. Crouch End. My surgery is small and it's supposed to have 2 of the best top docs... However they can also not be very nice at the same time.

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calflo
calflo
in reply to helixhelix

They are available now. My husband has had a txt message to advise him when the flu jab clinics are on

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AgedCrone
AgedCrone
in reply to calflo

Yes available here too....I had mine last week!

Here’s hoping they’ve got the mix right this year!

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regina79
regina79
in reply to AgedCrone

I'm so confused.. just asked my first Rheumatologist. She also said (like the other Rheum) that I don't need to have it :O

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AgedCrone
AgedCrone
in reply to regina79

As they know your clinical history I guess you will have to believe them.

If you change your GP see what the new doctor says.

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regina79
regina79
in reply to AgedCrone

These were the Specialists, not the GPs.

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AgedCrone
AgedCrone
in reply to regina79

Well a consultant rheumatologist is a specialist & would be the person to tell the GP what they recommend for their patient.

If I were you I would believe them & get on with getting your disease under control.

All the time you are doubting what your clinicians are telling you is stressful for you, and that is the last thing you need when you are trying to control an auto immune disease.

As we keep saying on here everybody is different and every doctor gives every patient different advice..... best thing really is to accept it .......so go off & have a restful stress free weekend.

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Tile
Tile
in reply to regina79

Probably cause you are on MTX and that itself will prevent a good response that's if it really prevents the flu. Anyway flu vacs can stir up autoimmune disease if you weren't on MTX.

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cathie
cathie
in reply to helixhelix

They’re saying beginning of October here in Scotland. It’s very desirable, flu can be so debilitating. It’s important to have the jab to boost immunity for us all. There may be regulations if you’re on certain medication but the GP etc will know.

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helixhelix
helixhelix
in reply to cathie

Where we are it’s the 15th October.....so the walk-in nurses’ clinic will be heaving that week!

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KittyJ

My GP always sends me a letter saying to make an appointment even when I was just on mtx. If I don’t reply they start texting me 😮 It’s free and done because we are immunosuppressed.

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regina79
regina79
in reply to KittyJ

I see. Is this in the UK right? x

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KittyJ

Yes the U.K.

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Lilwasp

At diagnosis, I went straight onto methotrexate, my consultant recommended to my GP that I have the annual flu jab and the pneumococcal jab too.

Since then I have been called each year for the flu jab, and had it via the GP surgery.

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regina79
regina79
in reply to Lilwasp

I see... Good to know. I suppose that my Rheum. really doesn't have a clue about much.. :(

x

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J1707

Oh no I’ve been told methotrexate lowers your immunity and we are vulnerable and should have the flu jab. If haven’t had the pneumonia vaccination then it would be wise to have it.

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oldtimer

Yes, as others have said, the normal advice is that all patients on methotrexate for Rheumatoid Disease should have a inactive flu vaccination.

You might find that the pharmacist can do it for you - worth asking. They are taking over a lot of the 'routine' work like this.

Is there a practice nurse at the practice that you could talk to? You might find them easier to talk to than someone who has apparently dismissed you as over-anxious.

But, of course, now you have a diagnosis of Rheumatoid Disease, you may find that the GPs are more sympathetic -it is easy to get into a habit of dismissing someone as anxious because they have unexplained symptoms. But when a diagnosis is made, it is easier for them to see why you might have behaved like that. In any case, your anxiety is just as much something they should be managing as much as your other problems!

Don't just give up on it. I find that my medical team need managing (or is it manipulating?) to co-operate with me and my needs. Perhaps practice the broken record technique (look it up!) if they don't appear to hear the first time.

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JFlay

Hi Regina, I'm not on MTX now (on Hydroxychloroquine) but as soon as I was diagnosed with RA my GP surgery put me on their list for yearly flu vaccine because RA is a chronic condition. They also said I should have the pneumonia one too but they didn't have any in stock. I will ask about it again when I go for my flu one in the next couple of weeks.

Also, you might find it cheaper to buy a prescription prepayment certificate from the chemists or online, I bought one that lasts a year (think it was just over £100) and it covers all your prescriptions. Mine will last me until I'm 60 next year then my prescriptions will be free 😂

All the best!

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regina79
regina79
in reply to JFlay

Good to know. Thank you!

That sounds like a very good idea. I’ll purchase one too given all the prescriptions I’ll need! X

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Tile
Tile
in reply to regina79

I never heard such pro Flu vacs in an autoimmune disease if they really prevented flu it would be great. Do you know what is in the flu vaccine? Look it up it will stir up autoimmune disease. Know someone who had lupus antibodies 2 days later wound up in a hospital with lupus. She never gets flu vacs because of what happened they have it in her charts. She hasn't walked since. Good luck.

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regina79
regina79
in reply to Tile

Gosh 😱don’t Know. But it doesn’t prevent the flu! It should prevent from

escalating to something more serious or just a very bad dangerous flu. Also we, RA patients and taking immuno suppressants, should not have ‘live’ flu vaccines. That’s all I know x

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Tile
Tile
in reply to regina79

Look up the truth about vaccines. Your GP probably HAS to recommend it.

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SylviaMA

Yes I get it every year. This year I had the one for pneumonia as well Keep smiling 😄

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regina79
regina79
in reply to SylviaMA

Good! Why smiling..?!

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SylviaMA
SylviaMA
in reply to regina79

Why not ?

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regina79
regina79
in reply to SylviaMA

haha yes!

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Osc101

My pharmacist did mine as soon as I asked last year. No need to book and free because I am on Methotrexate

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regina79
regina79
in reply to Osc101

Great! So it’s not about age?! I’ll go tonight

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KittyJ
KittyJ
in reply to regina79

Not an age thing Regina79.

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regina79
regina79
in reply to KittyJ

Interesting. I wonder what World was my Rheum. from at the time of telling me that 'they' only advise it to children and elderly..

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KittyJ
KittyJ
in reply to regina79

Their own little world. I’m definitely not elderly 😁

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Runner1111

Hi,

I take methotrexate for my RA and have always been advised by my rheumatology nurse and GP to have the flu jab each year. Had the jab now for five years and no complications.

On the year I was diagnosed, was also given the pneumonia jab - that’s a one off, not annual.

All the best xx

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Tile
Tile
in reply to Runner1111

Ok. Guess you haven't read up about adverse events including MANY people dying from flu vac. But if you can manage to STOP MTX FOR 2 WEEKS then go ahead because other wise you are putting junk into your bloodstream. Read up on the NEW DENGUE VAC how it caused dengue to WORSEN. Read up on how POLIO VAC actually caused polio outbreaks. Read up on recent 2 doctors from Pennsylvannia who were FULLY immune from measles BUT still got measles after vaccine. If you read as in depth as I did about the makings of vaccines from the first to the last you would understand. REMEMBER companies that make vaccines are not liable for adverse events including deaths if they were they WOULDN'T make them. They have to improve the ingredients that go into them because they are doing great HARM. PS they advise /push pregnant women to get FLU VACS EVERY YEAR. And when people still get the flu, they use "well you got a milder case" instead of, "orry guess it didn't work". Recently they admitted the vac was NOT the one for that year's flu,well at least they admitted it for a change. So 2 weeks off MTX.

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Cwendyn

I was almost frog-marched into having one! I think you need a better GP. There will be some good ones somewhere in your area. This one doesn’t sound very good at all.

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Mmrr

Both rheumatologist I have seen advise the flu jab. My GP gives me it no problem.

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WomblingFree

I’m the same as the others. I’ve been advised to have the flu jab too.

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CagneysMum

My GP recommends it because of my RA and it’s free.

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Dawn7

Hi, Yes, I was told as soon as diagnosed and put on MTX and hydroxychloroquine I would need a flu jab. My surgery calls me in each year. But as an alternative, most large pharmacies offer a free flu jab to people with immunosuppressant conditions. Definitely Tesco pharmacies do. They advertise it... You just need to fill in a couple of forms and they will do it there and then for you.

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regina79
regina79
in reply to Dawn7

Wow I wasn’t told! Are you based in London?? X

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Dawn7
Dawn7
in reply to regina79

No, Oxfordshire. Be worth checking if its nationwide.

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J1707
J1707
in reply to regina79

Every chemist offers it I’ve had mine done at Boots

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holly-willow

I had my flu jab last Saturday and was told that was the first week of them having the injections. I am eligible because of being over 65, but before that I was eligible because of being on methotrexate. I have always been told how important it is to have the flu jab when on methotrexate and in fact when the rheumatologist was about to put me on them which was in the winter time, she said that she wouldn't put me on them unless I had both the flu jab and the one for pneumonia as well.

So I am sure that you are eligible to have one free.

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regina79

I cannot believe that nobody (among 2 Rheumatologists) has not thought of telling me.

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KittyJ
KittyJ
in reply to regina79

My rheumy didn’t tell me either it’s my GP who told me regina79, so you’re not alone.

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Mall

I have just reached 65 and had a letter inviting me in for a vaccine. My gps surgery seem very keen to get all over 65s in as this gives them a monetary boost which helps finance other services.

Before I was 65 I had to ask for a flu vaccination due to taking methotrexate. I was never refused but sometimes had to convince a stroppy receptionist who knew no better in order to see a nurse.

Interestingly there were different flu vaccines last year for over 65s. The strain for 65 s had 3 antivirals whereas there were 4 in the jag for under 65s. So are pensioners given a cheaper one? Now there's a whole new debate.

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AgedCrone
AgedCrone
in reply to Mall

No for once it was not cost...it was found the 4th virus included for the under 65s was not effective for older people.....hence the two different vaccines.

It was real mess last year with Rituximab and the adjuvanted over 65 vaccine though......even the company making the 65+ vaccine did not know if it should be given if you were on Rtx. In the end there were no official NHS Guidelines....it ended up that some Rheumatologists advised it....some didn’t. I asked three local pharmacists & they all said the same.... no guidelines so they didn’t know.

The biologic nurse at the clinic I attended said if I had the 65+ vaccine I couldn’t have my infusion. So I didn’t have the vaccine, and I didn’t have flu. The year before I had the vaccination and I had flu....lucky me!

I have already had my flu vaccination this year......so we’ll see what happens!

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Tile
Tile
in reply to AgedCrone

Flu vacs don't prevent flu. Be great if they did. Plus it can stir up autoimmune disease. If you're on MTX doubt you will you have any benefit more negative. Do you know what goes in to making flu vacs. Look it up. You can refuse flu vacs in USA if you have autoimmune issues.

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crashdoll
crashdoll
in reply to Tile

Tile, the flu vaccination targets the most common strains of flu in that particular year. It reduces the risk, it does not eliminate the risk. The NHS is open and honest about this. For me, I’d rather reduce the risk. I know it does not mean I won’t get flu, it may mean I get a milder and shorter course of the flu though.

People on here have varying conditions in terms of severity of RA and it may affect their organs. For some of us, flu is much more dangerous than others, so a blanket statement isn’t very helpful. I have lung disease and I’m willing to do everything I can to prevent further episodes of illness. Until there is confirmed clinical evidence that the flu vaccine is risky in autoimmune diseases, it will continue to be suggested for us.

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regina79
regina79
in reply to crashdoll

Were you advised to discontinue MTX (if that’s what you’re taking) 2 weeks after vaccination? I read a few articles on this and that is best to stop DMARDs for a short period in order for the vaccine to be effective

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KittyJ
KittyJ
in reply to Tile

You can refuse them in the U.K. too Tile, no one forces you to have them.

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AgedCrone
AgedCrone
in reply to Tile

Different viruses are used every year depending on what the WHO

decide. If there has been a bad flu epidemic anywhere in the world samples of that virus will be included.

I’m not on Mtx any more...but as you say the vaccine does not stop getting flu......but it should ensure you get it more mildly than if you were not vaccinated.

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Tile
Tile
in reply to AgedCrone

Believe what you want to believe. Did you get a flu vax the year you were diagnosed? It stirs up autoimmune disease.

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Tile
Tile
in reply to Tile

Anyway if you are on MTX and the flu vac actually prevent ed flu you won't get a good enough response to it

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Tile
Tile
in reply to Tile

Read the post below about MTX and flu vacs.

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KittyJ
KittyJ
in reply to Tile

Didn’t stir up mine

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Tile
Tile
in reply to KittyJ

If you're on MTX it won't. Same as it won't prevent flu. But if the flu vac actually prevented flu than maybe worth it but it doesn't. In USA healthcare workers try their best not to get it. Knew a healthcare worker who get flu vac when pregnant than got Gullian Barrs then miscarried.

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regina79
regina79
in reply to Tile

That’s cos it’s not advised to have it when you’re pregnant....

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AgedCrone
AgedCrone
in reply to Tile

I have had flu vaccinations every since I was diagnosed 20 years ago except last year & that included 7 years on Mtx...I have only ever had Flu once...& that year I did have the vaccination,

But I have no other ongoing condition.....just good old.RD...so I reckon it’s the luck of the draw!

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crashdoll
crashdoll
in reply to Tile

Tile, I only had the flu vaccine *after* I was diagnosed with RA aged 21. It’s not about believing what I “want” to believe. I take advice from those who know far more than me.

As I said, it’s dangerous to give medical advice when you don’t know peoples medical histories. Many of us have additional health problems and also organ involvement. We must be guided by the medical professionals who know us and our medical history.

Before I had the flu jab for the first time, I made a GP appointment and talked in depth about my concerns and I was not persuaded but I made my own decision.

Dissuading someone from having medical treatment with no actual facts to back it up is harmful. If anyone is concerned about vaccines, please seek medical advice with someone who knows your personal medical history and risk factors.

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Tile
Tile
in reply to crashdoll

THERE ARE MANY FACTS proving the adverse events and deaths from flu vaccine. They even say on the insert that it can cause GUILLIAN BARRE SYNDROME which is an AUTOIMMUNE disease and very rare but NOT as rare if you had the flu vaccine. The insert does mention deaths as well. Not time ask for the insert and READ IT.

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KittyJ
KittyJ
in reply to Tile

There are a lot more common triggers than the flu vaccine but you’re not avoiding all those I bet. It’s a rare trigger.

Please stop scaring people, you could be putting their health at risk. If you don’t want the vaccine then don’t have it, it’s personal choice based on a persons health history of which you know nothing so don’t encourage people to put themselves at risk.

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Tile
Tile
in reply to KittyJ

So 2 weeks off MTX if you really want some type of immune response. Maybe you should get multiple vacs of flu since you are immune suppressed. If your disease flares after 2 weeks off then they will say it's from being off MTX but at least you will have some immunity?

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KittyJ
KittyJ
in reply to Tile

I’m not understanding what you are saying here at all.

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Tile
Tile
in reply to KittyJ

Discuss with your doctor. Ask them how can you have an immune response on MTX. Dont get mad at the messenger.

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KittyJ
KittyJ
in reply to Tile

Tile I’m not getting mad I’m just not understanding you. Anyway I don’t need to discuss it with my dr, I don’t get the flu jab.

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crashdoll
crashdoll
in reply to Tile

I’d like to see the facts and then I can present them to those who know me and my medical history. I think patients should be proactive and ensure we know what we are taking and consenting to but it’s not right to use the internet to say “I know the facts” to potentially vulnerable people and not share them. It’s also not right to dissuade anyone from seeking medical advice.

I am neither pro nor anti vaccination. I believe in choice but I also believe in education. I have yet to see reputable evidence of what you’re saying. I am, however, willing to reconsider my personal position on the flu jab if you can demonstrate any sort of risk. That said, I still don’t think it’s acceptable to tell people to avoid medical treatment. You are not their doctor. It’s ok to question medical professionals but it’s not ok to shout at people using caps and still not back up what you’re saying.

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Tile
Tile
in reply to crashdoll

Call your doctor ask him how can you have a immune response on MTX from a flu vac? I'm the messenger here, just discuss with your doctor.

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KittyJ
KittyJ
in reply to Tile

Tile no I didn’t get a flu vac the year I was diagnosed. Nor the years before. I was 27 and you couldn’t get a flu vac at that age. Didn’t have one for many years after either but still got aggressive ‘full blown’ RA. How does that work?

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J1707
J1707
in reply to Tile

I don’t agree I got flu on a regular basis since I was 21 (I’m 52 now) as I got older I got really bad chest infections and ended up in hospital a couple of times. Diagnosed with RD 3 yrs ago and had both flu and pneumonia vaccinations and haven’t had flu or a severe chest infection since. I’m on methotrexate.

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Tile
Tile
in reply to Mall

The debate should be do they actually prevent flu especially in immunocompressed people. Healthcare workers in USA do their best NOT to get one they see first hand all the adverse events. Like bringing on Lupus in a person who 2 days before only had antibodies and now she can't walk but they NEVER give her flu vacs anymore. It can also cause Guillans Barr syndrome it did in a pregnant healthcare worker who was paralyzed and miscarried.

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regina79
regina79
in reply to Tile

You should not get a vaccine or take strong drugs either when you’re pregnant. No doctor should ever advise to have a flu jab when pregnant. It’s. Wet dangerous

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Tile
Tile
in reply to regina79

SORRY but in the USA anyone at any age above 6 months can get a flu vac. You can't work around patients without a flu vac or you have to wear a mask. I paid for my own swine flu vac in 2009. But then after someone got Lupus and another Gullian Barre I started reading up more. The H1N1 swine vac brought on NARCOLEPSY in Finland. Narcolepsy is now considered autoimmune. In 1970s in Pennsylvania a flu vac similar to H1N1 caused a widespread outbreak of Gullian Barre. These are all documented. And remember DOCS DONT ALWAYS DO PAPERWORK FOR ADVERSE EVENT. The woman's doctor who got LUPUS didn't report it. She thought he did. but it's a lot of paperwork and doctors not required to report adverse events...too many for CDC to keep up what. I'm not saying dont get flu vacs but read up and have discussion. Doctors are pressured to push flu vacs in USA on EVERYONE. NYC nurses even protested the forced flu vacs...they see the adverse effects up close. They even wear masks around flu patients even when they do get vaccinated because they know how unreliable the vacs are. But if you are on MTX you would probably need a few doses or go off of your MTX then get vacs.

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KittyJ
KittyJ
in reply to Tile

No one here is saying the flu vaccine prevents flu. Everyone is making their own decision whether to have it or not based on their knowledge and health risks.

You’re referencing something that happened nearly 50 years ago and one person whose supposed case wasn’t documented. No wonder you aren’t convincing people. You’re just scare mongering.

In the U.K. we are not pressured to have the vaccine at all. We choose to or not. Our choice.

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Eve673

Last year was the only year I did not get a flu shot. Came down with horrible flu (yes it was diagnosed in the urgent care officially.)

Not wanting to go through that again, I had this years flu shot last week.

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regina79
regina79
in reply to Eve673

Omg. Horrifying.. I bet :o

I had a very terrible and long flu last year. But I was not diagnosed yet on on any medications.

I've just asked my second Rheumatologist and also she advised NOT to have it done?! I'm super confused! I'll ask the Chemist tonight.... curious to know what they say!!! x

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Mall
Mall
in reply to regina79

Did you ask why they are saying no; is there a medical reason that applies to you individually as it is generally recommended and in some cases insisted upon to have flu vaccinations.

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regina79
regina79
in reply to Mall

No. I don’t have any conditions apart from RA and Endometriosis. I think they either don’t know much about it or don’t think its important.

But GP surgery told me to ask my Chemist cos they definitely know! And they said you definitely have I done

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Tile
Tile
in reply to regina79

Your Rheumatologist knows what's best. Flu vacs don't prevent flu. Can only stir up autoimmune issues.

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Eve673
Eve673
in reply to regina79

Hi,

My rheumatologist (five years treating with him while I lived in California ) insisted I have the flu vaccine each year. Was done at his practice.

I'm on Remicade infusions, btw.

I moved to North Carolina last year and it was a mess of a scramble to find new specialty doctors. I forgot about the flu shot.

So, after this flu in March, that lasted three weeks, I did the flu shot.

Just do it 😊. Have a nice weekend, hope this helps.

3 likes
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Tile
Tile
in reply to Eve673

Read the post below about MTX and flu vacs.

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regina79
regina79
in reply to Eve673

Hi Eve. Were you advised to discontinue MTX (if that’s what you’re taking) 2 weeks after vaccination? I read a few articles on this and that is best to stop DMARDs for a short period in order for the vaccine to be effective

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Eve673
Eve673
in reply to regina79

Hi, After going through three weeks of a horrid, real, medically diagnosed flu last March , I just didn't care about the inoculation side effects. Though I was kinda sickish after the shot. Two days later I suddenly felt off. But, I knew why and just took care of myself.

When you're on anything that suppresses one's immune system, there are always concerns. However, having a flu inoculation vs having the flu....

Well, I'm inoculated. Your choice. Just don't over think it.

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Midwife1986

Always have it as I used to work for the NHS and it prevented me giving vulnerable people the flu. Now with being on Methotrexate I’m always told to get it and certainly wouldn’t miss it.

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regina79

Just checked with my Chemist and they said definitely do it and it’s free cos I’m on Methotrexate! X

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Tile
Tile
in reply to Midwife1986

Haven't got a flu vac for 10 years and live in a big city so not getting the flu vac prevented me from getting the flu and full blown autoimmune disease.

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KittyJ
KittyJ
in reply to Tile

That might be what you think worked for you but not for all of us.

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Tile
Tile
in reply to KittyJ

If you are on MTX there's no way you would build up immunity if you did your MTX isn't working

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AgedCrone
AgedCrone
in reply to Tile

I wonder why 90% of Consultant Rheumatologists in U.K. don’t agree with that?

From replies here almost everybody’s doctor recommends they do have a flu vaccination.....in fact at this time of year most GP surgeries send out letters asking the vulnerable & the elderly to make an appointment to be vaccinated.

For very few people with auto immune diseases it may cause a problem......but the for some people so do peanuts!

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Tile
Tile
in reply to AgedCrone

I know MTX can alter cognitive function. Please do some research 9n flu vacs then get back to me. You would make a good drug rep. Maybe you don't get the info I've been getting maybe you don't know about all the adverse events of flu vacs they are so numerous that the flu manufactures will only make Fluc vacs WITHOUT ANY LEGAL RESPONSIBILITY FOR ANY OR ALL ADVERSE EVENTS. That's a biggie and it doesn't matter if the vac did not PREVENT a single case of flu they are not liable. Please don't reply to me until you do research. I know plenty people who got flu vacs and still got the flu. But if you think it works (I haven't gotten any flu vacs in 10 yrs and no flu either) go ahead but who knows what is in the flu vac. In USA you can get an insert with the flu vac. But go online see what is put in it. Please don't reply again til you do your homework. I know if you're on MTX your immune system is shot and any vac will probably not take hold just please look up how flu vacs are made before you reply.

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KittyJ
KittyJ
in reply to Tile

1. Don’t shout at people, it’s not polite or necessary.

2. Anyone can reply to any post so please do not tell people they are not to reply to your posts. Don’t post if you don’t want people to respond to what you are saying. That’s what this site is for.

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AgedCrone
AgedCrone
in reply to Tile

I don’t need to do research Tile ....we all know research can prove black is white to those who do not fully understand the subject being researched.

The flu vaccine does not profess to stop you catching the flu ...what it does is introduce minute quantities of a dead virus, so that a person can slowly build up an immunity.......so that if that virus attacks that person their system will already have some chance of fighting it...& if it fails to do that 100% the flu that person gets will be milder than it would have been without the vaccination.

It doesn't help to try to scare those who are nervous about vaccinations....I know knowledge is power, but they should book a consultation with their doctors & discuss their options.... they should not decide not to have a vaccination because of something they read here.

Aspirin can cause horrendous side effects if the wrong person takes it ...but as far as I have read no research has yet ascertained a simple test to decide who those people are.

If world renowned scientists & the WHO spend years providing vaccines for those who want to have them.....I’ll keep having mine.

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KittyJ
KittyJ
in reply to Tile

I was referring to the fact you stated not having it prevented you getting full blown RA. In my case that didn’t happen so you are just lucky.

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Tile
Tile
in reply to KittyJ

Once I really did deep research on flu vacs after seeing someone get full blown LUPUS 2 days later or pregnant woman getting Guillsn Barre because of suppressed immune system due to pregnancy. and know healthy people who did get BOTH VAC and FLU. I started digging deeper and was just blown away. With other vacs you can do titers to see your immune response to vacs with the flu vac no such thing. And NO WAY would it work.

even if by some miracle it did work if you are on an immune suppressant. You'll probably just have some strange animal or fetal DNA flowing through your system at best.

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KittyJ
KittyJ
in reply to Tile

What you are saying is very rare and really we do not know those two people may have become ill anyway even if they didn’t have the vaccine. There is no way of knowing that.

It’s up to each person if they have the vaccine, personal choice. I’m sure people weigh up the risks based on their own health and health problems and make the best decision for themselves.

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regina79

Were you advised to discontinue MTX (if that’s what you’re taking) 2 weeks after vaccination? I read a few articles on this and that is best to stop DMARDs for a short period in order for the vaccine to be effective

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Arthurthecat

My GP insists I have them every autumn. I am on Methotrexate 20mg, Benepali, and Sulphasalazine. They call me in specially. I am 56 now , 5 years since diagnosis. In UK, East London, NHS.

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J1707

Every year I get the flu with major chest infections . Since being diagnosed with Ra (3 years) and on methotrexate I’ve had the flu vaccine. No flu no chest infections. My husband does not have the the flu vaccine but the last 2 years has had the flu and last year took him over 2 months to recover. He’s booked in for the flu jab next week.

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marvalusxoxo

No flu vaccines for me😊

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regina79

I did have the flu jab in the end.. last week. It was the non-live vaccine, and had NO side-effects whatsoever. The chemist said that I shouldn't get any side-effects as it's non-live.

So I'm glad I did it and even though I don't know if it will help, at least I'm trying to protect myself from a very severe flu..

I do get very ill lately and had a couple of terrible flu in the past two Winters, so I guess that if that can be avoided is great. But we'll see. I can only try!

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Tile

It's always good to have aluminum or other adjuvants floating in your blood and maybe going through the blood brain barrier. In USA children have to get 72 jabs of different infectious disease. They can't even enter school without being up to date in vaccines. They also need flu vac EVERY year. Even infants from 6 months have to get yearly flu vacs added to their other vaccine regimens. Not surprising that USA children have such a high rate of autism. Also MTHFR defects make it harder to detox all the adjuvants in flu and other vacs. And MTHFR defects are really common in autoimmune diseases.

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