Confused by my bloods: Hi all. Im hoping someone can... - NRAS

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Confused by my bloods

Staywildmoonchild
Staywildmoonchild
14 Replies

Hi all.

Im hoping someone can share some light on some blood test results for me? The results dont seem that far out of normal range to me? 🤔

White cell count 13.2

Neutrophil count 10.3

Renal profile: eGFRcreat 90

Serum C reactive protein 18

Erythrocyte sedimentation rate 27

Mean corpusc heamaglobin 25

Mean corpusc Hb conc 314

For some reason the gp didnt request a repeat of the Anti CCP which was 276 6 months ago and the rheumatologist dismissed me completely.

Im now awaiting a second opinion at a different hospital.

Ive been going around in circles for years. First they thought it was MS, then Lupus now possibly RA and Sjogren's. BUT..... my brother who suffers similarly to me has been diagnosed with MS this week. My head feels chaotic!

Please if anyone can, shine some light on whether these bloods would indicate RA being present. I need some hope for a diagnosis, im struggling to hang on.

Thank you in advance

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JFlay

Hi,

The two results that are for inflammation are serum c reactive protein (CRP) and erythrocyte sedimentation rate (ESR). They are two of the ones looked at with RA, for inflammation. Did you have your rheumatoid factor (RF) checked as well?

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Staywildmoonchild

Hi JFlay,

Thank you for taking the time to reply.

Yes that was <10 so negative. But the notes go on to say that 20-70%patients with RA may be RF negative. And then the journal that it was published in.

As i understand it, the Anti CCP is more accurate now than the RF test.

The blood test results sheet shows what the normal ranges should be. Mine don't seem to be far out so wondering if its unlikely that theres much going on???(despite living in hell)

Thanks again

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helixhelix

Your anti-CCP is the one that they should have taken notice of as it is strongly positive, And as it’s an antibody test they don{t need to repeat it.

By itself a positive anti-CCP isn't usually enough for diagnosis, but if you have classic symptoms of hot and swollen joints plus slightly raised inflammation markers then they should have taken notice.

What physical symptoms do you have?

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sylvi

I can't help you darling , but am sending hugs.xxx

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Staywildmoonchild

That really helped me when i received that, thank you 🤗

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hellykay

Your blood results are similar to my original ones. The GP told me I was all normal, Registrar slightly elevated nothing to worry about, the Rheumy that's far too high we need to look at this. All the same blood test.

For diagnosis I was also given other tests to determine inflammation levels present. One of them was a radioactive injection and then I was scanned but over 10 years ago now and can't remember what it was called! Bloods don't always show the whole story. Hope you get answers.

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J1707

Like you for years I was going to the doctor but was dismissed and treated for depression (no chance was I depressed) I didn’t have much pain but a lot of fatigue/ flu symptoms stiffness with swelling. Eventually diagnosed s-negative. My bloods were good and still are but my xrays and scans showed active RA and joint damage. I’m still suffering all of the above and bloods are still good( although my liver has had its moments due to meds). I would push for scan this is what shows any information in your joints. Good luck

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BoneyC

I'm no expert but I don't think MS shows up in bloods.

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Jacey15
Jacey15
in reply to BoneyC

MS shows up on a brain MRI and in cerebral spinal fluid from a lumber puncture.

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Lizbain1

Ms does not show in bloods.. They take bloods when they are in the process of a ms dx but only to eliminate other things like Lyme disease x

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Kerensa21

Can you ask rheumatology/email advice line for clarification on why anti ccp is so high? Like you I thought this was pretty specific for R.A. I was ‘highly positive’ for both antibodies on dx but lower than yours. Hope you get some answers soon 🙂

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Staywildmoonchild

Im expecting a appointmemt this week. If i havent heard from them i shall do just as u suggest. Thank you! 🤗

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Staywildmoonchild

Thank you every single one of you for taking the time to read and reply. ❤️

My comment about MS was purely to say that it feels like im doing a full 360 degree turn now my brother has been diagnosed. I had the brain scans and the lumbar punctures and agree that there are no blood tests to diagnose MS.

Im kinda scared ive got MS and RA tbh! But.....i know i shouldnt get ahead of myself, i guess years of fighting for diagnosis leaves us desperate to cling on to anything other than the feeling we are going mad and that our bodies are failing us, or maybe thats just me?🤔

I guess i will just have to be patient. Not a quality i possess 😂

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Deeb2908

I think anyone with an illness no matter what it is the word 'patience' is something we dont have, no matter how much we need it, that pot tends to go a tad low.

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