Neutropaenic Anyone?: Ive written about this before... - NRAS

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Neutropaenic Anyone?

Ive written about this before but wondering if anyone else struggling to find meds that help but dont either make them ill or neutropaenic. Recently started 2nd biologic but within a week am neutropaenic again so have had to stop. So frustrating...just wondering whats the solution. It's over 2 yrs since diagnosis and not been able to find a medication i can take yet!😱😔 Anyone else in that boat?

3 Replies

I know exactly how you feel. It has been much longer for me and just back to hospital having blood tested before next infusion due to neutrophils dropping. I’m sorry I don’t have any answers. Hugs xx


Hi there, so sorry you're having a bad time..... but yes they've been trying with me for nearly three years now with different treatments, none of which have suited me

Its soooo disappointing and painful ! I've had RA for around twenty years now and was bumbling along ok - or so I thought, then they decided time to try biologicals, none of which helped. Infusions next again no difference, then latterly tabs again that sent my bp sky high.... so back to the drawing board am waiting for them to decide what's next and am only just coping on methotrexate injection weekly and 5mg pred daily and living on pain killers , it sounds like were in the same boat ! 🚣‍♂️🚣‍♀️😘


Hi Beelady. I am on my seventh biologic due to my neutrophils dropping significantly low. I am praying this one works otherwise I would need to think next steps. I still have the inflammation in hands and feet despite being on a biologic.

I had to see a haematologist and have also had a bone marrow - as my consultant said there is a way where I can take additional medication that could up my neutrophils so I have a prescription for that. My hope is that I don't have to use it because it’s not cheap.

Don't give up keep the faith as you shall find the right meds that works for you.

Wishing you well - Hessie 😌


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