Anyone's symptoms get worse after taking Orencia? - NRAS

NRAS

36,425 members45,073 posts

Anyone's symptoms get worse after taking Orencia?

Lfdblue profile image
3 Replies

Hi I'm new here, having discovered this forum whilst researching things to help with my RA.

I'm 47 and was diagnosed about 10 years ago and despite switching meds constantly for a while there, everything has been fairly well controlled. (Plaquinil, Methotrexate, 3 different biologicals)

I've been on Orencia for the last 2 years and until this year things were ok, not great, but manageable. However, I've been experiencing the most horrendous flare for several months now, with little or no sign of an end.

I take my Orencia injection on a Monday and have recently noticed that I experience chronic fatigue and more extreme pain the day after.

Has/is anyone else in the same boat?

Thanks for reading

X

(Currently sitting in my kitchen looking out the window at the grass that needs mowing. I wonder how long it needs to get before it's officially a meadow?)

Written by
Lfdblue profile image
Lfdblue
To view profiles and participate in discussions please or .
Read more about...
3 Replies
Hessie5 profile image
Hessie5

Hi - like you not convinced it (Orencia) is doing enough. Still the inflammation in feet and hand! Stiffness in morning horrendous - this is my 7th injection which I take on Monday - I wake up the next day a train wreck so darn tired I long for a coffee - now I don't drink coffee - just hoping it gets me through the fatigue.

So sounds like our stories are very similar.

I am sitting in my kitchen on my laptop feeling drowsy 🙁 right now. Took 1 x paracetamol as my hand pain was no joke.

I am contemplating next step.

Take care - wishing you better soon. Hessie x

Lfdblue profile image
Lfdblue in reply to Hessie5

Thanks for replying Hessie and whilst it's good to hear I'm not imagining it, I'm sorry your having issues too.

I feel like I'd escaped a lot of the problems before now. My feet and my hands were bad, but I still managed to walk, even run once everything unfurled and my hands worked enough to do my job - I'm Involved in the knitting industry and it's my passion too. Now my hands, well my thumbs have got so bad that I can't knit for any longer than 5 minutes, so I'm currently in mourning.

That sounds dramatic, I know, but I'm a bit lost without my needles 😥 and it's probably best not to mention the small yarn shop of supplies I own.

I've just cooked dinner and feel like I need to go for a lay down again.

Hoping the paracetamol helped?

(I'm off to stand in a field and scream)

X

Hessie5 profile image
Hessie5 in reply to Lfdblue

Oh no - sorry to hear the impact it is having. I am hanging onto hope that things will get better for us all.

I struggle with my feet and since biologics my hands too. When it impacts your job that's frustrating and it's not dramatic one bit.

I am having an early night as have to tackle the stress of trains and tubes with a hand that is so sore and feet so tender. I thought these biologics was supposed to ease these symptoms but I have learnt to live with the aches and pain and paracetamol - it helps short term.

I may just join you in that field 😌 - I pray tomorrow is a good day for you. Take it easy now. Hessie x

You may also like...

How long does orencia (abatacept) take to work?

I've just done my 5th injection of orencia and my joints are still so swollen and painful. I think...

Symptoms Worse again after being off medication.

taking them, the methotrexate isn't really making much difference at the moment but I've read it...

has anyone been on orencia anti-tnf

find is abatacept-orencia could I ask if there is anyone that has been on orencia and if there is...

Has anyone found that their RA symptoms have flared up after getting the flu' jab?

It is the first time in my 2 years since diagnosis that I haven't been on a DMARD stronger than...

Day 5 - symptoms getting worse :(

around. This morning I've been feeling light-headed, my sight is a tad blurry, I'm continuously...