rtx without mtx: those of you that have ra/ild are... - NRAS

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rtx without mtx

those of you that have ra/ild are there any of you that have rtx infusions without mtx

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Methotrexate caused me to have pneumonitis which took three years to get lungs to near enough normal so therefore am unable to ever take it again says consultant.

I therefore have sulphasalazine along with retuximab infusions. With prednisolone, as many of us do, to help if/when have a bad flare up + pain killers.

Hope this information is of help to you.

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Hi Phil

I'm on Truxima (rtx biosimilar) without mtx as the latter gave me recurrent chest infections and a partially collapsed lung, from which I've recovered. Hooray! I was then given Benepali as a monotherapy but it did not produce sufficient improvement in my symptoms so the consultant switched me to Truxima.

I've only had my first cycle of infusions (16 May and 5th June) and although I'm sure the Truxima is working I'm hopeful of further improvement in the next few weeks before I see my consultant at the end of August. My hands are still rather swollen and stiff and so are my ankles and knees, which limit my mobility. I'm still taking 10mg Prednisolone a day and not keen to reduce that yet until I'm confident I've had sufficient improvement on the Truxima. The good news is that, so far, I'm not aware of having any chest problems or side effects on it which are troubling me.

Hope it works well for you.

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I am only on rituximab. Had my 3rd lot of infusions a few weeks ago and managing.

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Had my first two Rituximab infusions without methotrexate. Feeling slightly better but not pain free knees and hands still pretty sore. Hopefully things will improve after a few weeks or months. Fingers crossed.

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I have been taking Rubicon for GOING ON 3 YEARS..I TAKE PLANQUNIL WITH IT EVERY DAY. HAVE HAD NO PROB!EMS/SIDE EFFECTS. GOOD stuff......!!!!!

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