As mentioned before I only diagnosed Jan this year, had first flare in Nov/Dec last year, that I only now know was a flare, then diagnosed jan, had another flare june/July this year i know everyone is different but my question is on average how many flares have you all experienced in a year/ two year period.
I am concerned as I have just started a new job/ career this week which was a big life changing decision, so new employment don't understand or really know, what inflammatory arthritis is eventhough I have mentioned it.
I am on acroxia 90mg day and age 44
I appreciate all your feed back
Castroll
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Castroll
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Why are you only on Arcoxia? Is there a reason you haven’t been prescribed disease modifying treatment (DMARDS) but just anti-inflammatories?
I’d also want to ask my doctor why I am being prescribed 90mg a day, as I thought that if you taking it for more that a week you should only have 60mg a day now?
Thanks I will ask the rheumatoid nurse, as my bloods were clear even during flare they decided against DMARDS, drugs.
I don't even have a 6 monthly appointment to see the rhemuy department, they have given me an open appointment to call if I need to see tgem. But I do have a physico appointment soon, not date yet. Last rheumy letter did state to keep taking acroxia, nothing about reducing it.
Have you been diagnosed with palindromic arthritis, rather than rheumatoid arthritis? If not, I would take up that open appointment and talk to them about long term management.
Pretty regularly without meds & my hands & wrists constantly. It’s frustrating that people are so unaware of the disease and confuse it with osteo but work should make allowances for you: nras do really good free booklets for employers and employees on their publication list. x
The fatigue is also a big factor alongside the flares, I’ve been getting them consistent at the moment because I’m off meds due to chest infection thank god the antibiotics are finished, I can start again xxx
As Kerensa21 says the nras publications are very good, I got the one "Supporting an Employee with RA" I gave this to the HR lead, although they are already aware of my RA, I informerd my employer some years ago, then, thank goodness the company was taken over a couple of years ago, they follow the correct procedure's thank goodness, and the amount of times I have sat with our HR and cried buckets and really opened up to her about what it's like living and working with RA, she is very understanding, I don't feel like I'm having to constantly battle like I had to do with the previous employer,
I don't say it's been easy, but it's definitely improved, we also have health and wellbeing managers too who are there to support the workforce with health problems, don't know if you have them with your new employer, Union Reps can also help you if you have problems, Aw the other publication is 'I want to work' there's a lot of legal jargon in that one,
Good luck, I'm sure that if you explain it exactly as it is, they will be understanding, I found, that because we all understand our disease and have lots of knowledge already, it's difficult for an employer to be just told that they have an employee with RA, it's like what do we do!!
I hope that everything goes well for you Castroll, it's very hard, thank goodness for "Our Forum Family"these wonderful people have kept me going through some very difficult times, even when I haven't felt like posting, I just login and read the posts, it always gives me a lift!! So chin up and don't give in
Inflammatory arthritis is a generic term covering several arthritic conditions including RA, lupus, fibromyalgia and others. It might be worth ringing the helpline for NRAS and having a good chat with some to clarify what ‘good treatment’ might look for you and how to best secure it.
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Having flare not sure what to do. 
Do you have 20 minutes for a survey on back pain? As an AS sufferer myself I'd like to understand how others often deal with it.
Do you have low inflammatory markers even when you are obviously flaring or suffering active RD?
Flare ups- how long do they last?
How do you tell the difference between the pain from RA joint damage and the pain from RA being active/having a flare?
