Cramp!: Hello all, I had been in remission for several... - NRAS

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Cramp!

gilox profile image
20 Replies

Hello all, I had been in remission for several months, then had a really bad flare,( not on any meds ) was put on prednisone which saw it off in a couple of days, but now having the most horrible cramps at night, mainly feet, & calf, also hands during the day which is not great! Would be so grateful if anyone could help with a solution as I am so tired so is the OH! Many thanks, Gillian

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gilox
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20 Replies
Matilda_1922 profile image
Matilda_1922

Maybe try tonic water or plenty of water as it might be due to dehydration that can cause cramps. The warmer weather can do this. Tonic water has quinine in it that helps with cramps. I suffer with cramp all over my body. It’s really painful.

gilox profile image
gilox in reply to Matilda_1922

Have tried all that Matilda, with no result apart from running to the loo!😁 did wonder if it was related to the previous flare. Thank you so much for taking the time to reply, going to give 2.5 litres water & 3 tonic waters a try today, although I only had one calf cramp last night it was very painful & still aching this morning, once again many thanks. X

rab1874 profile image
rab1874

Maybe your treatments stopped working and you need changed just a thought

gilox profile image
gilox in reply to rab1874

Pretty sure that is the problem, but in the 16 years I’ve had rd, this is the first time I’ve had cramps over such a sustained time! Many thanks. X

Mmrr profile image
Mmrr

It sounds like you need a medicine review, I get cramping when the RD is not well controlled.

gilox profile image
gilox in reply to Mmrr

Thankyou, have to see rheumy nurse in August, sorry you have a similar problem, but at least now I know I’m not the only one. Hopefully we both will get it sorted!

Caza profile image
Caza in reply to Mmrr

Me too

Deniseelk profile image
Deniseelk

How is your Potassium level? If it’s low it causes cramps plus lots of other symptoms similar to those of RA! As I am finding out ☹️

gilox profile image
gilox in reply to Deniseelk

Am having a health check on Thursday so will ask about it then, hopefully will get some help then! X

Deniseelk profile image
Deniseelk in reply to gilox

Hope it goes well and you get back on track very soon.

Gnarli profile image
Gnarli

It's worth checking with your GP that there is nothing awful happening. Himself and I used to take Indian Tonic water for cramp but were recently told that athletes prefer magnesium as a remedy. I bought magnesium plus vitamin B6 and we take that in the morning with a large glass of water. So far it's working very well.

gilox profile image
gilox in reply to Gnarli

That sounds like a possibility, will check it out. Thankyou!

oldtimer profile image
oldtimer

It seems daft but I find Marmite helps! But not entirely and I always have more cramp when I have to have an increase of prednisolone.

gilox profile image
gilox in reply to oldtimer

I was really beginning to think I was mad to suppose that pred had anything to do with these cramps, now guessing I was right thanks to you, not sure I like the Marmite idea though!!!

I have had a problem with cramp off and on since I was only 19 years old (I am in my 60's now). It is quite bad just at the moment and in the night I wake up with it in my ankles and all up my leg, both the front and back and also the sides. I often scream out with it and wake my husband up who has to try to rub it. I used to manage to get out of bed somehow and stretch but I can't manage to do that now.

When I was in my twenties I had a spell of it that was so bad that it went on for days and I couldn't straighten my legs out properly. I told the GP that I had then all about it but he just dismissed it and didn't suggest anything to help.

Over the years I have found that tonic water helps sometimes, that magnesium tablets have helped at other times and that I need to keep hydrated and sometimes take a bit of salt on my meals, but I have never found an answer that is all that good.

gilox profile image
gilox

That sounds horrific! Hopefully will find an answer soon, if I do I will let you know! X

purl profile image
purl

Bananas and tonic water work for me when I get cramp.

gilox profile image
gilox in reply to purl

Drinking tonic right now, both hands, left thigh, cramping for last 20 mins!

Gio1997 profile image
Gio1997

I think my first time posting here but I have a quick fix for leg cramps. Kosher dill pickle juice! I hobble into the kitchen with a leg or foot cramp, open the refrigerator and take 2 sips right out of the pickle jar,-no one at my house actually eats pickles-and by the time I stumble back to bed, they are gone.

The long term fix is potassium. I take 1200mg a day. The amount was calibrated by my GP. Even with that amount, I still need to resort to pickle juice once in a while...

Hope this helps..

gilox profile image
gilox in reply to Gio1997

That sounds umm interesting!😂 but if last night is anything to go by, it’s worth a try! Watch this space, oh, never eat pickles but there’s a first time for everything! Many thanks.

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