Shortage of medication: Just wondered if anyone has... - NRAS

NRAS

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Shortage of medication

Hessie5 profile image
15 Replies

Just wondered if anyone has been told this, with no date of when the medication is ever going to be delivered!!!

It's been nearly 8 weeks waiting for my biologic. Just think it fickle for my rheumatologist to recommend something that the pharmacist state they can not get due to a shortage. I would never off known had I not called them enquiring about my delivery date.

It's making me look into other means as feeling disillusioned with it all.

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Hessie5 profile image
Hessie5
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15 Replies
alexask profile image
alexask

Must be frustrating. Whilst you are waiting for standard medicines, it might be worth trying out a few supplements to see if they benefit. Such as curcumin with pepper, boswellia, Fisetin, black seed oil and bicarbonate of soda. Try a food eliminating diet to see if these benefit your symptoms.

beeckey profile image
beeckey in reply to alexask

What medication are you waiting for.That is awful to leave you like that surely they can look at something else

Hessie5 profile image
Hessie5 in reply to beeckey

Hi Beeckey, I am supposed to be on the biologic Kevzara Sarilumab. Been told to take Ibuprofen. Thanks for the response. Hope you are well...

Hessie5 profile image
Hessie5 in reply to alexask

Hi Alexask. I am on all the above except never heard off Fisetin, shall review so thank you 😌

medway-lady profile image
medway-lady

Yes but not for an RA medication. I was advised it was a community issue and still available in hospital so had to ask Consultant for hospital script, then filled ok so might be worth asking still in hospital .

Hessie5 profile image
Hessie5 in reply to medway-lady

Hi - thanks for your swift reply. My rheumatologist from the hospital requested from Lloyds pharmacy (prefer Healthcare at Home) - it is them causing the major issues here through sheer incompetence and major flaws. I think our hospital is looking to drop them to be honest as too many complaints. Hope you are good.

CagneysMum profile image
CagneysMum

Try going to a bigger pharmacy to fulfil your prescription - larger Boots have better access (and stores) of drugs in some cases. Give one of them a call and see?

Hessie5 profile image
Hessie5 in reply to CagneysMum

Hi CafneysMum -thank you for your response. I can only get this biologic through my hospital who use the arm of Lloyds Pharmacy Clinical Homecare (their reviews are atrocious). I am just piggy in the middle waiting to hear from my rheumatologist and the chap at the hospital who manages all medicines via these imbeciles, I did ask him whether he could source elsewhere, it seems not. So right now in Limbo 😔 Thanks for the suggestion, I only wish it was that easy. Take care.

CagneysMum profile image
CagneysMum in reply to Hessie5

I see, sorry.

Hessie5 profile image
Hessie5 in reply to CagneysMum

No need to apologise. I didn't realise Lloyds Pharmarcy dealt with this side of things, the same as Healthcare at Home who are extremely good. Lloyd's need to give up this side of things, they are causing a lot of people pain and stress. Have a lovely day now, 😌⛅

pd118 profile image
pd118

filled up a week medical dispenser for home but filled up another one for as I walk out that door …………..

Taurea profile image
Taurea

Recently I had problems getting hrt from Lloyds. The doctors surgery phoned several independent chemists who were able to get it as they are not tied to certain suppliers in the way Lloyds is. Might be worth trying small independent pharmacies.

Hessie5 profile image
Hessie5 in reply to Taurea

Hi Taurea - it has to come through Lloyds HomeCare the hospital signed a contract with them. Thanks

Matilda_1922 profile image
Matilda_1922

Do you happen to know what biological you are starting

Hessie5 profile image
Hessie5 in reply to Matilda_1922

Sorry for late reply in such pain. I am on Kevzara Sarilumab. Thanks

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