Baricitinib Users

[MrsAouda]

Hello! I was wondering if anyone would mind sharing their experiences of Baricitinib with me? I have RA and have previously been prescribed Methotrexate and Leflunomide but with negligible results. My lovely consultant has now recommended biologics and for various reasons had prescribed Baricitinib. I know it is fairly new and am struggling to find patient reviews and so I wondered if anyone here might help? Thank you very much. Mrs A x

[sylvi]

I am waiting to go on it so i can't tell you yet darling.xxx

[skinnycappuccino in reply to sylvi]

Sylvi, that's great news! I hope you can get on it really soon - I've had great results from it and I hope you'll do really well on it as well!! Happy Easter and lots of love,

Christine xx

[MrsAouda in reply to sylvi]

Oh good luck - let’s keep each other up to date with our progress! Xxx

[sylvi in reply to MrsAouda]

I am with you on that .xxxx

[oldtimer]

If you put baricitinib into the search box, you will find the previous posts on this treatment. There is information, too, on the NRAS website about JAK inhibitors.

[MrsAouda in reply to oldtimer]

Thank you! I have had a look on the NRAS website which was useful but it’s always good to hear of personal experiences xxx

[Calph]

I am on Methotrexate and Cimzia injections and not heard of Baricitmib so can’t help there but I will say the Cimzia and methotrexate have really helped me. Hopefully you will have the same results with your new drug.

Regards

[MrsAouda in reply to Calph]

Thank you x

[Leics]

Hi I’ve been put on baricitinib about 6 weeks ago. I’m also taking low dose steroids at the moment until the baricitinib gets to all the inflammation I’ve managed to accrue over the last few years without treatment of any kind. I have to say I’m VERY encouraged by the change it has made the swelling in my feet, hips and knees has gone down dramatically since starting baricitinib and the chronic pain is better too. I haven’t had any side effects and I’m only currently on 2mg dose. My consultant is very encouraged as am I in the change so far and may consider upping the dose soon. I cannot say I’m there yet but I’ve got a lot of catching up to do. It looks very promising and seems to start working straight away but still takes time. I haven’t had any infections (touch wood) and my immune system is severely compromised so that’s another positive. I wouldn’t worry about baricitinib because in my case it seems to be working well. Good luck and go for it I say what have you got to lose. I hope it helps you too.

[MrsAouda in reply to Leics]

Thank you; that’s very encouraging! I’m pleased you’re doing so well on it! And you’re right... what have I got to lose? Xx

[skinnycappuccino]

Hello and happy Easter!

I've been on Olumiant ( = Baricitinib) since January 2018, along with 20mg Leflunomide. Before that, I had been on Simponi for 6 years but unfortunately, after a few years it caused some sort of Psoriasis-type skin rash on the soles of my feet so my rheumy put me on Olumiant instead.

It's working just as well as Simponi - even better as I haven't had any side effects from it at all. I'm in medical remission, which means no symptoms as long as I keep taking my meds.

I am really happy for you that your rheumy has recommended Olumiant and wish you as much success with it as I am having

All the best,

Christine xx

[MrsAouda]

Thank you, Christine - that’s so helpful! And wonderful to hear that you’re in remission... long may it continue. Happy Easter! Xxx

[Amnesiac3637]

Hi. I have posted a reply under Olumiant rather than Baricitinib to 'Roostermum' if it's any help two months on. You'll see from my glowing testimony that I've had a fantastic response to Baricitinib! Hope you have the same result if you've been on it. Best wishes.