Each day something else hurts

[Amhoarten]

I've been diagnosed a few years now. High positive CCP positive RF. I currently take sulpha and hydroxy. I was also in mtx but suffer with it so needed to drop that one. It's a shame as it's that seems to take all pain away. Anyway what I would like to ask is am I experiencing similar symptoms to others. Now I know everyone is different but with very infrequent rheumy appointments and not knowing anyone else with Ra I thought I would ask. So generally I get sore hands, not always really swollen but often red. Pain is generally throbbing and feels like a bruise or a sun burnt sensitive type pain if touched. Is this the typical pain? It's mainly the middle joints on each finger but often the knuckles too. Then if I do too much stretching at work such as reaching to a shelf the pain will be in then be in my shoulder. Or if I walk further than normal my feet do the same. It seems my body cannot take anything extra from normal movements. I may then get sore wrists then they get better then sore fingers again. Then if my hubby is really lucky my jaw goes. Seems never ending. Tomorrow who knows what it will be. I'm currently supporting a few pairs of fat puffy red fingers just as it gets warmer too. No one understands.

[Frankiefocus]

Hi Amhoarten

Sorry to learn of your pains.

I was diagnosed last summer with RA and taking the same meds as you and also off mtx as it was making me too nausious. Same symptoms... sore finger joints elbows feet and my jaw has been really bad and only calming down now after 2 weeks. Good news is that I have been applying a hemp active gel on my fingers elbow and feet or any joint that is sore twice a day and so far it has helped but dont take my word for it as everyone is different.

I have only been using this for a week so its early days. Hope this helps.

[Mmrr]

Hi, yes unfortunately the stiffness and aches seem to move around from joint to joint, fingers, wrists, elbows, shoulders, toes, feet, ankles, hips and knees. It sounds as if your RD is not well controlled, it might be worth contacting your rheumatologist for advice ?

[Elmo333]

Sounds very familiar to me! I’m anti CCP and RA positive and have confirmed RA but consultant says it is palindromic in nature. Look up palindromic rheumatism and see if it looks relevant. To be honest, I don’t know what is RA and what is PR in me but it skips from joint to joint and is extremely painful. On the positive side it is more under control now with meds so I hope it will get better for you too.

[roseyx]

Hi Amhoarten, Yes this is how I experience RA too..Mainly in hands, wrists and feet but when it's bad any and every joint in my body can be affected. It's interesting what you say about not being able to do anything extra without feeling it afterwards. I think this is where doing something like yoga to build up strength and flexibility comes in and could help. Not that I get round to this much, myself but I feel I should because since doing a few kilometres on exercise bike most days my knees and ankles have been a lot better than they were before.

[Hidden]

Unfortunately Amhoarten this is how this disease works! For many it involves lots of joints, and who knows where it gonna affect each day. I’ve had this disease for 22yrs and I still can’t work it out!!! Personally for me I find doing everything in moderation and having frequent rest periods helps, not forgetting medications and pain relief. Maybe a call to your Rhumatology secretary to see if you can get an earlier appointment to get your meds tweaked might help. Your right! no one understands, and it’s difficult to explain to people how your feeling, but all on this forum knows where your coming from and can sympathise with you. Hope you get sorted soon 🤗 X

[Uga35570]

I am sure all of us understand so don't give up. You said mxt was a problem was for me in tablet form so was changed to injections much better. Have had to tweek up from 12.5 to 15mgs as inflammation levels were up a bit but otherwise fine. Hope this helps all the best.

[Amhoarten in reply to Uga35570]

Thanks for the replies. I will see how things go and give rheumatology a call.

[Richardcamp]

Hi sorry you have to go through this, its terrible. I was diagnosed 2 1/2 years ago and believe me what your describing and feeling is very similar to what I myself have to dealing with. Now my specialist and family doctor tell me I have fibromyalgia also. It's like a crazy roller coaster ride of joint pain and stiffness -anxiety- depression -tendonitis- sinus infections - jaw and ear trouble - breathing problems - weight gain etc it's horrible. Sure hope it gets better for you 😊