I 'm new here: I am New to the site this is my time... - NRAS

NRAS
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I 'm new here

I am New to the site this is my time line so far

Gilbert’s syndrome (GS)

In 2000 diagnosis with GS you have higher than normal amounts of bilirubin in your blood.

Rheumatoid Arthritis (RA)

I was diagnosis with :- CCP Positive Rheumatoid Arthritis in 2013 , the Methotrexate and Sulfasalazine did not work.

July 2014 started on Certoliznumab Pegol anti-TNF Cimzia (trade name) sub cut injection every two weeks (200mg) which worked but I still had to take Mex 10 tabs once a week. I managed to get Mex reduced down to 6 tabs 15 mg due to side effects of Mex.

Osteoporosis

Feb 2014 diagnosis with Osteoporosis, DEXA Scan results bone density loss in vertebra, start on one tab per week of (Alendronic Acid 70 mg, due to side effects changed to Risedronate sodium 35mg.) plus Calcium & D vitamin Calceos 500 mg 2 Tabs each day.

Kind regards

4 Replies
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Welcome RedPip!

It sounds like you have your hands full with the various meds and conditions you listed. Gilbert’s isn’t one we hear of too often here but I am familiar with it. I would think that would be a concern with some of the RA meds like MTX but sometimes it just comes down to a catch-22. Anyway, this forum is full of kind, informed and helpful people so hang out, ask questions or just read on and find what works for you.

D🏃🏽‍♀️

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Thank you for the reply , I will try to do a post asking how many other people also have Gilbert’s syndrome (GS) and are on Mex etc

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Welcome to the forum. We are generally a supportive and friendly group. Hope you find it helpful and you can share some of your wisdom too. 😊

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Welcome to the forum you certainly have a lot going on, we’re all here to help each other and understand what your going through xxx

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